Eric TaylorFeb 2022 Poster – Access to Genomic Medicine: Perspectives from the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community eBooks
Eric TaylorFeb 2022 Poster – NORD Summit “Symptomatology around menopause in patients with Ehlers-Danlos Syndromes and hypermobility spectrum disorders” eBooks
Eric Taylor Poster – NORD Summit “Motivations for joining rare disease online support communities” eBooks
Kathleen Hoffman, PhD, MSPHNov 2021 Why choose Inspire for clinical trial awareness? eBooks, Infographic
Kathleen Hoffman, PhD, MSPHJun 2021 ASCO Abstract #1531″ People with cancer are likely to accept the COVID-19 vaccine, but politics tracks with attitudes: An Inspire and COSMO survey eBooks
Kathleen Hoffman, PhD, MSPH ASCO Abstract #2621 ”Adverse effects of COVID-19 vaccination among cancer patients: Results from an Internet-based survey” eBooks, Research
Eric TaylorOct 2020 Leveraging social media networks to understand and address challenges due to COVID-19 within the rare disease community eBooks
Kathleen Hoffman, PhD, MSPHFeb 2019 Partnership and Progress for a Rare Disease Community Infographic eBooks
inspireJun 2018 Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers eBooks, Infographic, Research