INSPIRE RESEARCH

Publications

2023
Multifocal Motor Neuropathy and Chronic Inflammatory Demyelinating Polyradiculoneuropathy Patient Journey and Experience: A Qualitative Study
VIEW THE POSTER
2023
A Novel Patient-Centered Real-World Evidence Study Designed to Better Understand Short Bowel Syndrome Using Longitudinal Data in the United States
VIEW THE POSTER
2022
Patient and Caregiver Insights into the Disease Burden of Myelodysplastic Syndrome, Patient Related Outcome Measures
READ THE STUDY
2022
COVID-19 Vaccine Hesitancy and Acceptance Among Individuals With Cancer, Autoimmune Diseases, or Other Serious Comorbid Conditions: Cross-sectional, Internet-Based Survey, JMIR Public Health Surveillance
READ THE STUDY
2021
Leveraging Social Media as a Thermometer to Gauge Patient and Caregiver Concerns: COVID-19 and Prostate Cancer, European Urology Open Science
READ THE STUDY
2020
Using data from an online health community to examine the impact of prostate cancer on sleep, BJU international
READ THE STUDY
2020
Pfizer Turns to Health Social Network to Find Patients With Rare Lung Cancer Genetic Variants
READ THE STUDY
2019
Patient-Reported Outcomes in Online Communications on Statins, Memory, and Cognition: Qualitative Analysis Using Online Communities, Journal of Medical Internet Research
READ THE STUDY
2019
Assessment of public and patient online comments in social media and food and drug administration archival data, Research in social & administrative pharmacy
READ THE STUDY
2019
Three randomized controlled trials evaluating the impact of “spin” in health news stories reporting studies of pharmacologic treatments on patients’/caregivers’ interpretation of treatment benefit, BMC Medicine
READ THE STUDY
2019
Early Detection of Adverse Drug Reactions in Social Health Networks: A Natural Language Processing Pipeline for Signal Detection, JMIR Public Health and Surveillance
READ THE STUDY
2018
Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery?, Journal of Oncology Practice
READ THE STUDY
2018
Detecting Chemotherapeutic Skin Adverse Reactions in Social Health Networks Using Deep Learning, JAMA Oncology
READ THE STUDY