INSPIRE RESEARCH

Publications

2024
Identification and Description of Patients with Anhedonia using Patient Voice
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2023
New Inspire study with Takeda Pharmaceuticals sheds light on rare neuromuscular disease
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2023
Inspire to present findings of real-world evidence study on rare form of peripheral neuropathy at ISPOR 2023
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2023
A Novel Patient-Centered Real-World Evidence Study Designed to Better Understand Short Bowel Syndrome Using Longitudinal Data in the United States
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2022
Patient and Caregiver Insights into the Disease Burden of Myelodysplastic Syndrome, Patient Related Outcome Measures
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2022
COVID-19 Vaccine Hesitancy and Acceptance Among Individuals With Cancer, Autoimmune Diseases, or Other Serious Comorbid Conditions: Cross-sectional, Internet-Based Survey, JMIR Public Health Surveillance
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2021
Leveraging Social Media as a Thermometer to Gauge Patient and Caregiver Concerns: COVID-19 and Prostate Cancer, European Urology Open Science
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2020
Using data from an online health community to examine the impact of prostate cancer on sleep, BJU international
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2020
Pfizer Turns to Health Social Network to Find Patients With Rare Lung Cancer Genetic Variants
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2019
Patient-Reported Outcomes in Online Communications on Statins, Memory, and Cognition: Qualitative Analysis Using Online Communities, Journal of Medical Internet Research
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2019
Assessment of public and patient online comments in social media and food and drug administration archival data, Research in social & administrative pharmacy
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2019
Three randomized controlled trials evaluating the impact of “spin” in health news stories reporting studies of pharmacologic treatments on patients’/caregivers’ interpretation of treatment benefit, BMC Medicine
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2019
Early Detection of Adverse Drug Reactions in Social Health Networks: A Natural Language Processing Pipeline for Signal Detection, JMIR Public Health and Surveillance
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2018
Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery?, Journal of Oncology Practice
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2018
Detecting Chemotherapeutic Skin Adverse Reactions in Social Health Networks Using Deep Learning, JAMA Oncology
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2017
Enabling social listening for cardiac safety monitoring: Proceedings from a drug information association–cardiac safety research consortium cosponsored think tank
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