Rethinking patient engagement in clinical trials: Be part of the solution

Rethinking patient engagement in clinical trials: Be part of the solution By Kathleen D. Hoffman, PhD Seated in the waiting room of a large medical center, I overheard the bright eyed, young man behind the reception desk ask a new patient, “Would you like to learn more about participating in our research?” I smiled and thought, this is part of the solution. But it is a small part. I’ve been going to the same clinic for five years and today is the first time I’ve heard this question. I wondered if anyone would ask me - [...]

Everything Your Organization Needs in One Place: Inspire Products

Everything Your Organization Needs in One Place: Inspire Products Inspire has four product lines available to address the needs of the life science industry and other healthcare organizations, like hospitals and clinics. Thousands of patients within Inspire’s communities are interested in and actively looking for opportunities to participate in clinical trials. They are members with rare diseases as well as more common conditions. They are asking each other questions like: “How do I know if a clinical trial is right for me? How do I know if I am right for a [...]

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective The patient perspective is based in the lived experience of illness.  Entering into patient-centered or patient informed medication development means understanding that this worldview cannot be provided independently by researchers or clinicians.1 At Sanofi, patient perspectives have been integrated into clinical trials for over seven years and for more than five years in research, according to Victoria DiBiaso, ‎Global Head Clinical Operations Strategy & Collaboration and her colleagues (Amy Ba, Patricia Roselle and Anthony Yanni).  “It’s been a truly transformative approach and has helped us make [...]