Kathleen Hoffman, PhD

Kathleen Hoffman, PhD

About Kathleen Hoffman, PhD

Kathleen is a communications professional, social scientist and writer who develops evidence-based communications focused on the human side of healthcare. As a professional writer and communicator of nearly two decades, Kathleen is a leader in the patient empowerment movement. Kathleen earned her PhD in Communications from the University of Alabama, preceded by a master’s degree in Television and Film from Syracuse University and a master’s degree in Public Health at UNC-Chapel Hill. She was also a two-time fellow of Healthcare Communication at Harvard University’s School of Public Health. Kathleen lives near Boston with her husband and son.
Senior Health Researcher and Writer

On being a medical hero in the era of social media: Discussing clinical trial participation online

On being a medical hero in the era of social media: Discussing clinical trial participation online By Kathleen Hoffman, PhD “Garrett’s Hero Run” is not the name of a New York Times Bestseller or an up-and-coming blockbuster movie - though it could be. At the moment, it’s the name of a series [...]

Using social listening to understand information needs during the patient journey: ovarian cancer

Using social listening to understand information needs during the patient journey: ovarian cancer By Kathleen Hoffman, PhD While patients see physicians as the primary and most trusted information resource, research indicates that patients with cancer also seek information elsewhere. Reasons for investigating further include 1) verification or double checking, 2) clarifying what [...]

Listen to People Impacted by Rare Disease

Listen to People Impacted by Rare Disease By Kathleen D. Hoffman, PhD “The success (or failure) of the majority of rare disease drug development programmes rests on surrogate outcomes (e.g. laboratory measures, organ size) that may not reflect treatment benefits that patients value.”1 ~Morel and Canto Thomas Morel and Stefan Canto’s [...]

Rethinking patient engagement in clinical trials: Be part of the solution

Rethinking patient engagement in clinical trials: Be part of the solution By Kathleen D. Hoffman, PhD Seated in the waiting room of a large medical center, I overheard the bright eyed, young man behind the reception desk ask a new patient, “Would you like to learn more about participating in our [...]

First Breast Cancer “Durable Regression” with Immunotherapy: Judy Perkins, Inspire member

First Breast Cancer “Durable Regression” with Immunotherapy: Judy Perkins, Inspire member By Kathleen Hoffman, PhD MSPH On June 4, 2015, Holly Kitchen, a young mom with metastatic breast cancer, published a video that received over 46 million views in one week. Its message? “Metastatic breast cancer has no cure.”1 Exactly three years [...]

Inspire Insights: What You Learn From Caregivers

Inspire Insights: What You Learn From Caregivers By Kathleen Hoffman, PhD MSPH According to the AARP’s 2015 report, “Valuing the Invaluable,” around 18% of adults in the US provide care as unpaid caregivers to family members. Over half of these caregivers are women. 1, 2 Of Inspire’s 1.3 million members, about one-third [...]

Video Vignettes: Through Their Own Eyes: Ovarian Cancer

Video Vignettes: Through Their Own Eyes: Ovarian Cancer Members of the Ovarian Cancer Support Community on Inspire often refer to each other as “Teal Sisters*.” It's a term of solidarity and camaraderie as they face their condition together. Their posts reflect and express warmth, concern, understanding and an eagerness to help. Below [...]

Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery

Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery Our hearts start to beat at around a month and a half into pregnancy.1 We may take its constancy for granted until something goes wrong. Worldwide, cardiovascular disease is the leading cause of death with 17.7 million deaths each year.2 Coronary artery disease [...]

Video Vignettes: Through Their Own Eyes: Living With Ostomy

Video Vignettes: Through Their Own Eyes: Living With Ostomy “The same thing could be said about guys who go to war, that unless you've been there you can't really understand what it is like and so your really best buddies are the ones that have been warriors like you…Those are the people [...]