News and InfoDec 2016
2109, 2021

Impressive Advances in Treating Chronic Lymphocytic Leukemia

By |September 21st, 2021|Patient Communities, Patient Insights|0 Comments

Impressive Advances in Treating Chronic Lymphocytic Leukemia By Kathleen Hoffman, PhD, MSPH Chronic Lymphocytic Leukemia (CLL) is the most prevalent form of adult leukemia, with about 20,000 new diagnoses per year in the United States alone.1  While it can occur at earlier ages, it is primarily a disease of older adults, with 70 years as the average age at diagnosis. Most of those who are diagnosed have [...]

1409, 2021

Undertreated Psoriasis Patients Need Answers

By |September 14th, 2021|Patient Communities, Patient Insights|0 Comments

Undertreated Psoriasis Patients Need Answers By Kathleen Hoffman, PhD, MSPH A 2021 study concluded that psoriasis continues to be a common inflammatory disease, affecting more than 7.5 million adults in the US alone --  3.0% of the US adult population.1  By far the most common form (80% of cases)2 is plaque psoriasis, which intermittently creates patches of scaly and itchy skin, often on the scalp, knees, or [...]

3108, 2021

Born Since 1990? Your Risk of Colorectal Cancer Just Went Up

By |August 31st, 2021|Marketing, Patient Communities|0 Comments

Born Since 1990? Your Risk of Colorectal Cancer Just Went Up By Kathleen Hoffman, PhD MSPH The age at which people at average risk of colon cancer should start being screened used to be 50.2 In May 2021, the U.S. Preventive Services Task Force lowered it to 45. It’s been lowered because the age at which people are being diagnosed with colorectal cancer (CRC) is going down [...]

2408, 2021

Positive News for Triple Negative Breast Cancer

By |August 24th, 2021|Patient Communities, Patient Insights|0 Comments

Positive News For Triple Negative Breast Cancer By Kathleen Hoffman, PhD, MSPH Almost 150,000 patients and caregivers have interest in, have joined communities, have searched and posted about breast cancer and advanced breast cancer on Inspire. Almost 22,000 posts have been written about breast cancer research. There has been intense interest in finding medications that can penetrate the 10-20% of breast cancers that don’t respond to the [...]

1708, 2021

The Life Changing Diagnosis of Inflammatory Bowel Disease

By |August 17th, 2021|Marketing, Patient Communities|0 Comments

The Life Changing Diagnosis of Inflammatory Bowel Disease By Kathleen Hoffman, PhD MSPH ​​ I've had UC for 4 years also. Diagnosed with a colonoscopy after 5 months of diarrhea, losing 1/3rd of my otherwise normal weight and enough blood to require a 2-pint transfusion. Pausing a conversation to use the restroom is biologically necessary, but can be socially awkward. People living with inflammatory bowel diseases (IBD) [...]

1008, 2021

“I need to breathe” — Living with Asthma: Patient Experiences, Old Challenges, New Drugs

By |August 10th, 2021|Patient Communities, Patient Insights|0 Comments

"I need to breathe" — Living with Asthma: Patient Experiences, Old Challenges, New Drugs By Kathleen Hoffman, PhD MSPH Earlier this month, the American Lung Association (ALA), Inspire’s partner for the “Living with Asthma” online community, announced that it is looking for patient panelists to participate in a PFDD (Patient-Focused Drug Development) meeting on Pediatric Asthma, to be held virtually on 9/20/2021. “The meeting will consist [...]

308, 2021

Out of Nowhere: Kidney Cancer

By |August 3rd, 2021|Patient Communities, Patient Insights|0 Comments

Out of Nowhere: Kidney Cancer By Kathleen Hoffman, PhD MSPH Of the estimated 1.9 million cancers diagnosed each year in the US, around 4 percent are kidney cancers, the most common are renal cell carcinomas (RCC). Around 76,000 new cases will occur in the US in 2021, 48,0000 in men and 27,000 in women. Kidney cancer can occur at any age, but is most likely to [...]

2707, 2021

New Treatments Create Buzz Among Patients with Prostate Cancer and their Caregivers

By |July 27th, 2021|Clinical Trials, Patient Insights|0 Comments

New Treatments Create Buzz Among Patients with Prostate Cancer and their Caregivers By Kathleen Hoffman, PhD MSPH Prostate cancer is highly treatable in its early stages, much less so once it has metastasized, where the five-year survival rate is below 30%. In search of more treatment options, a patient with advanced prostate cancer wrote on Inspire: I was diagnosed with prostate cancer in [date]. Have done virtually every [...]

2007, 2021

Engaging with Non-Small Cell Lung Cancer and Small Cell Lung Cancer Patients and Caregivers

By |July 20th, 2021|Clinical Trials, HEOR, Marketing, Patient Engagement, Patient Insights|0 Comments

Engaging with Non-Small Cell Lung Cancer and Small Cell Lung Cancer Patients and Caregivers By Kathleen Hoffman, PhD, MSPH The word “Earth” doesn’t reflect the complexity and diversity of the planet. Similarly, the term “lung cancer” only identifies the location of the cancer. There are two general categories, non-small cell lung cancer (NSCLC) and small cell lung cancer (SCLC), differentiated by cell size, characteristics, treatments and prognosis. [...]

1307, 2021

Patient Perspectives on an Invisible Disease: Lupus and Lupus Nephritis

By |July 13th, 2021|Clinical Trials, HEOR, Marketing, Patient Insights|1 Comment

Patient Perspectives on an Invisible Disease: Lupus and Lupus Nephritis By Kathleen Hoffman, PhD, MSPH Imagine going to see a doctor when you are exhausted and enduring multiple kinds of pain, and they recommend a “psych” evaluation. When they “can’t find anything,” the medical professional you looked to for help decides you must be making it up. Many patients with conditions that mimic other disorders describe facing [...]