BlogDec 2016

Can social media help uncover insights about the patient journey?

Can social media help uncover insights about the patient journey? By Monica St Claire Does patients’ social media content truly reflect the real world experience of patients in general? Can it uncover [...]

Using social listening to understand information needs during the patient journey: ovarian cancer

Using social listening to understand information needs during the patient journey: ovarian cancer By Kathleen Hoffman, PhD While patients see physicians as the primary and most trusted information resource, research indicates that [...]

Warring Parties: Voices of Patients in Pain Vs. “Opioid Crisis”

Warring Parties: Voices of Patients in Pain Vs. “Opioid Crisis” By Sara Ray So many of us have pain management issues. We are fighting the doctors and the state laws and the [...]

“Learn something from every patient” – Dr. James Allison, Nobel Prize Winner

"Learn something from every patient" By Kathleen D. Hoffman, PhD “I’m an exceptionally lucky guy,” the newest Nobel Laureate in Physiology or Medicine said in a recent interview.1 Dr. James P Allison, [...]

Listen to People Impacted by Rare Disease

Listen to People Impacted by Rare Disease By Kathleen D. Hoffman, PhD “The success (or failure) of the majority of rare disease drug development programmes rests on surrogate outcomes (e.g. laboratory [...]

Rethinking patient engagement in clinical trials: Be part of the solution

Rethinking patient engagement in clinical trials: Be part of the solution By Kathleen D. Hoffman, PhD Seated in the waiting room of a large medical center, I overheard the bright eyed, [...]

Implementing patient centricity?

Implementing patient centricity? By Monica St. Claire Over 1,000 employees from bio-pharmaceutical, medical device and associated supplier companies responded to the Aurora Project’s recent Patient-Centric Benchmarks Survey. Of those respondents, 91% [...]

Over Two-Thirds of Inspire’s Membership Want Clinical Trial Information

Over Two-Thirds of Inspire’s Membership Want Clinical Trial Information By Richard Tsai Recently a member of a rare disease community on Inspire asked fellow members, “What should I know about clinical [...]

How R&D Teams Can Use Patient-Centricity for Clinical Trial Optimization

How R&D Teams Can Use Patient Centricity for Clinical Trial Optimization By Monica St. Claire In 2014, Tufts Center for the Study of Drug Development performed a comprehensive assessment of the [...]

What is a Virtual Advisory Board product?

What is a Virtual Advisory Board product? By Monica St. Claire Almost 60 percent of all clinical trial protocols have at least one amendment. Amendments lower the numbers of recruited patients [...]