Email in Healthcare: Reaching the Most Engaged Patients with your DTC Campaigns
Email in Healthcare: Reaching the Most Engaged Patients with your DTC Campaigns By Odin Soevik Patients are becoming increasingly involved in managing their own health. While they might not be able to [...]
What I told researchers trying to find a cure for my rare disease
What I told researchers trying to find a cure for my rare disease By Seth Rotberg When I was about 12, I started noticing that something was wrong with my mom. She [...]
The real world online-Understanding and using patient-reported real world evidence from social media
The real world online--Understanding and using patient-reported real world evidence from social media By Monica St Claire Next week, I will be presenting at the Patient Registries and Real World Evidence Summit [...]
Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development
Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development By Hannah Eccard FDA’s focus of incorporating the patient voice into the drug development process requires the life science industry to [...]
Video Vignettes: Through Their Own Eyes: Rare Autoimmune Liver Diseases
Video Vignettes: Through Their Own Eyes: Rare Autoimmune Liver Diseases By Kathleen Hoffman, PhD, MSPH The liver has been called a forgiving organ because of its capacity to regenerate. However, chronic unrelenting [...]
Social Listening to Understand the Unmet Needs of Patients
Social Listening to Understand the Unmet Needs of Patients By Marina Shayevich and Sara Ray Across healthcare, patients lament the imperfection of pharmaceutical treatment. Although grateful to have life saving and life [...]
A dazzle of zebras: Ehlers-Danlos Syndromes
A dazzle of zebras: Ehlers-Danlos Syndromes By Hannah Eccard On their website, The Ehlers-Danlos Society explains why people with Ehlers-Danlos Syndromes (EDS) call themselves zebras. “Medical students have been taught for decades [...]
On being a medical hero in the era of social media: Discussing clinical trial participation online
On being a medical hero in the era of social media: Discussing clinical trial participation online By Kathleen Hoffman, PhD “Garrett’s Hero Run” is not the name of a New York Times [...]
What Matters Most to People Impacted by Rare Disease: An Inspire-FDA Collaboration
What Matters Most to People Impacted by Rare Disease: An Inspire-FDA Collaboration By Sara Ray What happened when we compared research strategies used to obtain patient insights? We discovered that using multiple [...]
How You Can Achieve Patient Focused Drug Development
How You Can Achieve Patient Focused Drug Development By Monica St Claire The application of a sociolinguistic lens can glean hidden meanings within seemingly ordinary communications. On the Society of Linguists [...]