News and InfoDec 2016
2007, 2021

Engaging with Non-Small Cell Lung Cancer and Small Cell Lung Cancer Patients and Caregivers

By |July 20th, 2021|Marketing, Clinical trials, HEOR, Patient engagement, Patient insights|0 Comments

Engaging with Non-Small Cell Lung Cancer and Small Cell Lung Cancer Patients and Caregivers By Kathleen Hoffman, PhD, MSPH The word “Earth” doesn’t reflect the complexity and diversity of the planet. Similarly, the term “lung cancer” only identifies the location of the cancer. There are two general categories, non-small cell lung cancer (NSCLC) and small cell lung cancer (SCLC), differentiated by cell size, characteristics, treatments and prognosis. [...]

1307, 2021

Patient Perspectives on an Invisible Disease: Lupus and Lupus Nephritis

By |July 13th, 2021|Marketing, Clinical trials, HEOR, Patient insights|1 Comment

Patient Perspectives on an Invisible Disease: Lupus and Lupus Nephritis By Kathleen Hoffman, PhD, MSPH Imagine going to see a doctor when you are exhausted and enduring multiple kinds of pain, and they recommend a “psych” evaluation. When they “can’t find anything,” the medical professional you looked to for help decides you must be making it up. Many patients with conditions that mimic other disorders describe facing [...]

2906, 2021

More Good News about Treating Multiple Myeloma

By |June 29th, 2021|Marketing, Clinical trials, HEOR, Patient insights|0 Comments

More Good News about Treating Multiple Myeloma By Kathleen Hoffman, PhD, MSPH This spring, the FDA approved a drug called idecabtagene vicleucel ('ide-cel'), a form of CAR-T cell therapy available to treat some forms of recurrent multiple myeloma (MM). Ide-cel is used to modify a patient’s own T-cells to attack the B-cell maturation antigen (BCMA) present in myeloma.1 Multiple myeloma is a rare chronic cancer of the [...]

2206, 2021

Searching for Answers to Migraines

By |June 22nd, 2021|Patient engagement, Clinical trials, HEOR, Patient insights|0 Comments

Searching for Answers to Migraines By Kathleen Hoffman, PhD, MSPH Migraine headaches can be devastatingly debilitating: When my migraines get so bad, I stare at the wall in complete silence not letting my head touch anything. If my head touches something, it will send more pounding pain throughout my skull. Migraines are a widespread source of disability worldwide, with one systematic review of US government health studies [...]

1506, 2021

Genetic and Cellular Studies Carve New Pathways to Treating Epithelial Ovarian Cancer

By |June 15th, 2021|Patient insights, Clinical trials, HEOR, Patient-centered healthcare|0 Comments

Genetic and Cellular Studies Carve New Pathways to Treating Ovarian Cancer By Kathleen Hoffman, PhD, MSPH Ovarian, fallopian tube cancer and primary peritoneal cancer are often grouped under the name epithelial ovarian cancer. When classified as subcategories of ovarian cancer, primary peritoneal cancers and fallopian tube cancers are considered rare. The incidence rate of primary peritoneal cancer is estimated to be 6.78 per million.1 Fallopian tube cancers [...]

806, 2021

Cancer, COVID, and Vaccinations: The Patient Perspective at ASCO 2021

By |June 8th, 2021|Patient insights, Clinical trials, HEOR, Patient communities, Patient stories, Patient-centered healthcare|0 Comments

Cancer, COVID, and Vaccinations: The Patient Perspective at ASCO 2021 By Kathleen Hoffman, PhD, MSPH Inspire is presenting the results of two separate surveys during the American Society of Clinical Oncology® (ASCO) virtual conference being held June 4-8. Chosen from the more than 5,400 abstracts submitted for the 2021 ASCO Annual Meeting, the studies focus on COVID-19 vaccine hesitancy and reactions to the vaccine among patients with [...]

2505, 2021

Promising New Therapies for Treating Atopic Dermatitis

By |May 25th, 2021|Patient communities, Clinical trials, HEOR, Patient insights, Patient stories, Patient-centered healthcare|0 Comments

Promising New Therapies for Treating Atopic Dermatitis By Kathleen Hoffman, PhD, MSPH People who do not have atopic dermatitis (AD), also called eczema, can have the simple experience of having an itch relieved by scratching. For people with atopic dermatitis, this is a heavenly fantasy. For AD sufferers, the symptom most of them have in common is areas of skin with unrelenting itching, burning, or otherwise painful [...]

1805, 2021

In Search of Answers: Head and Neck Squamous Cell Carcinoma (HNSCC)

By |May 18th, 2021|Patient communities, Clinical trials, Patient insights, Patient stories, Patient-centered healthcare|0 Comments

In Search of Answers: Head and Neck Squamous Cell Carcinoma (HNSCC) By Kathleen Hoffman, PhD, MSPH The basic dry facts about Head and Neck Squamous Cell Cancer (HNSCC) are that it is a cancer of the mucosal lining of the oral cavity and larynx; typical treatments include surgical intervention, chemotherapy, radiation, and, more recently, immunotherapy, followed by various kinds of rehabilitation and reconstruction. However, let’s make it [...]

1105, 2021

I was diagnosed with Ankylosing Spondylitis at 15

By |May 11th, 2021|Patient communities, Clinical trials, Patient insights, Patient stories, Patient-centered healthcare|0 Comments

I was diagnosed with Ankylosing Spondylitis at 15 By Kathleen Hoffman, PhD, MSPH Imagine a patient with inflammatory joint pain. You’re probably not visualizing a young person in his 20’s or teens with severe lower back pain, but that’s a likely scenario for sufferers of ankylosing spondylitis (AS). One Inspire member said: I was diagnosed with AS at 15 years old ... in my case it took [...]

405, 2021

The KRAS Mutation: Cancer Patients Search for Hard-To-Find Trials

By |May 4th, 2021|Patient communities, Clinical trials, Patient insights, Patient stories, Patient-centered healthcare|0 Comments

The KRAS Mutation: Cancer Patients Search for Hard-To-Find Trials By Kathleen Hoffman, PhD, MSPH There is new hope for cancer patients with the mutated protein KRAS G12C, an oncogene previously thought to be “undruggable.”1 KRAS is one part of the RAS-RAF cellular signaling pathway that drives a cell to multiply, and its mutations are commonly present in pancreatic, colorectal, and non-small cell lung cancers (NSCLC), all of [...]