Lost Voice: Addressing healthcare inefficiencies through patient equality
Lost Voice: Addressing healthcare inefficiencies through patient equality After attending the Healthcare Information Management Systems Society (HIMSS ) 2018 in Las Vegas in March, Christina Farr, the CNBC reporter who covers health [...]
Launching communities with Inspire: The Pancreatic Neuroendocrine Tumor (PNET) Support Community
Launching communities with Inspire: The Pancreatic Neuroendocrine Tumor (PNET) Support Community For patients and caregivers facing rare cancers, finding others going through the same experience is challenging. [...]
Patients MacGyvering: a resource for device and equipment manufacturers
Patients MacGyvering: a resource for device and equipment manufacturers To solve problems that patients actually have is a challenge. Companies miss opportunities when blindly offering patients what people other than patients say [...]
Inspire posts forward medical research in adverse drug reactions, new study shows
Inspire posts forward medical research in adverse drug reactions, new study shows Over 2 million injuries, hospitalizations and deaths in the US each year are associated with post-approval adverse drug reactions (ADRs).1 [...]
Video Vignettes: Through Their Own Eyes: Ovarian Cancer
Video Vignettes: Through Their Own Eyes: Ovarian Cancer Members of the Ovarian Cancer Support Community on Inspire often refer to each other as “Teal Sisters*.” It's a term of solidarity and camaraderie [...]
From Research To Action for Patients
From Research To Action for Patients It is exciting to see the results of research providing strong, positive benefits to patients. That was the take-away from a joint presentation made by Inspire [...]
Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery
Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery Our hearts start to beat at around a month and a half into pregnancy.1 We may take its constancy for granted until something [...]
What We Can Learn From Patients’ Stories
What We Can Learn From Patients' Stories What is disease? As bioethicist, Jackie Leach Scully wrote, “Most of us feel we have an intuitive grasp of the idea, reaching mentally to images [...]
The Case for Online Consumer Recruiting
The Case for Online Consumer Recruiting Over the past few years, recruiting for consumer healthcare market research has undergone a drastic change. In the past, pharma clients would take their business questions [...]
Virtual Patient Engagement: Inspire and the NIH Clinical Center
Virtual Patient Engagement: Inspire and the NIH Clinical Center Engagement with patients and caregivers is at the heart of Inspire’s community of cancer, chronic, and rare disease support groups. While there are [...]
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