Blog Dec 20, 2016

What We Can Learn From Patients’ Stories

What We Can Learn From Patients' Stories What is disease?  As bioethicist, Jackie Leach Scully wrote, “Most of us feel we have an intuitive grasp of the idea, reaching mentally to images [...]

The Case for Online Consumer Recruiting

The Case for Online Consumer Recruiting Over the past few years, recruiting for consumer healthcare market research has undergone a drastic change. In the past, pharma clients would take their business questions [...]

Virtual Patient Engagement: Inspire and the NIH Clinical Center

Virtual Patient Engagement:  Inspire and the NIH Clinical Center Engagement with patients and caregivers is at the heart of Inspire’s community of cancer, chronic, and rare disease support groups.  While there are [...]

Introducing Inspire Recruit

Introducing Inspire Recruit Commonly discussed statistics on patient enrollment and retention in clinical research paint a bleak picture. Clinical trial on-time completion rates are low--only around 20%. This is due in part [...]

Finding Patients With Rare Cancers Quickly

Finding Patients with Rare Cancers Quickly Almost one-third of all cancer deaths are caused by rare cancers but rare cancers represent only between 23.4% and 27% of all cancer cases.1 Between 25 [...]

Video Vignettes: Through Their Own Eyes: Living With Ostomy

Video Vignettes: Through Their Own Eyes: Living With Ostomy “The same thing could be said about guys who go to war, that unless you've been there you can't really understand what it [...]

In new report, Inspire examines clinical trials, genetic testing

In new report, Inspire examines clinical trials, genetic testing Editor’s note: Last week, Inspire released, “Insights from Engaged Patients: An Analysis of the Third Annual Inspire Survey”. Over the past three years, [...]

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective The patient perspective is based in the lived experience of illness.  Entering into patient-centered or patient informed medication development means understanding [...]

Patient Engagement Leadership Series Part 1: Clinical Trial Participants Are Medical Heroes

Patient Engagement Leadership Series Part 1:  Clinical Trial Participants Are Medical Heroes “I think a hero is any person really intent on making this a better place for all people.”  ~ [...]