Blog Dec 20, 2016

In new report, Inspire examines clinical trials, genetic testing

In new report, Inspire examines clinical trials, genetic testing Editor’s note: Last week, Inspire released, “Insights from Engaged Patients: An Analysis of the Third Annual Inspire Survey”. Over the past three years, [...]

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective The patient perspective is based in the lived experience of illness.  Entering into patient-centered or patient informed medication development means understanding [...]

Patient Engagement Leadership Series Part 1: Clinical Trial Participants Are Medical Heroes

Patient Engagement Leadership Series Part 1:  Clinical Trial Participants Are Medical Heroes “I think a hero is any person really intent on making this a better place for all people.”  ~ [...]

Finding the Rarest of the Rare for Market Research

Finding the Rarest of the Rare for Market Research: Patient Journey Mapping Through In-depth Interviews People with rare diseases have poorly understood patient journeys.  Recently, Inspire conducted a project for a client [...]

Video Vignettes: Through Their Own Eyes: Hepatitis C Virus Liver Disease

Video Vignettes: Through Their Own Eyes: Hepatitis C Virus Liver Disease October is Liver Awareness Month.  Today, Inspire is sharing information about the Hepatitis C virus and its impact on the liver. [...]

Diversity Initiatives? Are They Worth It?

Diversity Initiatives? Are They Worth It? When I asked audience members at a panel discussion during the inaugural Clinical Leader Forum, held in Philadelphia on May 10-11, 2017, three questions about diversity [...]

What Do Patients Wish Their Doctors Knew?

What Do Patients Wish Their Doctors Knew? For the better part of the 21st century, researchers from academia and the pharmaceutical industry have observed, recorded, and attempted to influence the physician-patient [...]

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2)

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2) In part 1, Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?, I shared the results of a think tank co-sponsored by the [...]

Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?

Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance? (Part 1) Spontaneous reporting of adverse drug reactions by health care providers has been the keystone of pharmacovigilance.  Yet health care providers tend [...]