Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development
Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development By Hannah Eccard FDA’s focus of incorporating the patient voice into the drug development process requires the life science industry to [...]
Video Vignettes: Through Their Own Eyes: Rare Autoimmune Liver Diseases
Video Vignettes: Through Their Own Eyes: Rare Autoimmune Liver Diseases By Kathleen Hoffman, PhD, MSPH The liver has been called a forgiving organ because of its capacity to regenerate. However, chronic unrelenting [...]
Social Listening to Understand the Unmet Needs of Patients
Social Listening to Understand the Unmet Needs of Patients By Marina Shayevich and Sara Ray Across healthcare, patients lament the imperfection of pharmaceutical treatment. Although grateful to have life saving and life [...]
A dazzle of zebras: Ehlers-Danlos Syndromes
A dazzle of zebras: Ehlers-Danlos Syndromes By Hannah Eccard On their website, The Ehlers-Danlos Society explains why people with Ehlers-Danlos Syndromes (EDS) call themselves zebras. “Medical students have been taught for decades [...]
On being a medical hero in the era of social media: Discussing clinical trial participation online
On being a medical hero in the era of social media: Discussing clinical trial participation online By Kathleen Hoffman, PhD “Garrett’s Hero Run” is not the name of a New York Times [...]
What Matters Most to People Impacted by Rare Disease: An Inspire-FDA Collaboration
What Matters Most to People Impacted by Rare Disease: An Inspire-FDA Collaboration By Sara Ray What happened when we compared research strategies used to obtain patient insights? We discovered that using multiple [...]
How You Can Achieve Patient Focused Drug Development
How You Can Achieve Patient Focused Drug Development By Monica St Claire The application of a sociolinguistic lens can glean hidden meanings within seemingly ordinary communications. On the Society of Linguists [...]
Can social media help uncover insights about the patient journey?
Can social media help uncover insights about the patient journey? By Monica St Claire Does patients’ social media content truly reflect the real world experience of patients in general? Can it uncover [...]
Using social listening to understand information needs during the patient journey: ovarian cancer
Using social listening to understand information needs during the patient journey: ovarian cancer By Kathleen Hoffman, PhD While patients see physicians as the primary and most trusted information resource, research indicates that [...]
Warring Parties: Voices of Patients in Pain Vs. “Opioid Crisis”
Warring Parties: Voices of Patients in Pain Vs. “Opioid Crisis” By Sara Ray So many of us have pain management issues. We are fighting the doctors and the state laws and the [...]
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