News and InfoDec 2016
1705, 2023

Research reveals barriers to genomic medicine for people with EDS

By |May 17th, 2023|Patient Pulse, Patient communities, Patient insights, Patient-centered healthcare|0 Comments

Research shows people with Ehlers-Danlos syndrome face barriers to accessing genomic medicine. Social-structural barriers like long wait times to see a geneticist top the list.

1502, 2023

Insights into patients living with seasonal affective disorder (SAD)

By |February 15th, 2023|Patient Pulse, Patient communities, Patient insights, Patient-centered healthcare|0 Comments

Seasonal affective disorder (SAD), a mental health condition triggered by seasonal changes, affects about 10 million American adults (3% of the general population). An additional 10-20% of people experience mild symptoms of SAD. Those with seasonal depression may reach out to their healthcare provider for help with the symptoms. But statistics and clinical visits do not always showcase the realities of how SAD truly affects people.  

1001, 2023

Research reveals interstitial cystitis triggers and frustrations

By |January 10th, 2023|Patient communities, Patient insights, Patient-centered healthcare|0 Comments

The Interstitial Cystitis Association (ICA) estimates that as many as 8 million women and 4 million men in America live with interstitial cystitis, also known as bladder pain syndrome or IC/BPS. Various treatment pathways exist, but they are not guaranteed to work for all individuals that are living with the condition.

1010, 2022

Taking patient market research to the next level with PatientJourney+

By |October 10th, 2022|Patient communities, Patient insights, Patient-centered healthcare|0 Comments

The Inspire community is the largest repository of fully consented patient-created health content on the internet. By participating, Inspire members support one another through their health journeys, and often help to accelerate medical breakthroughs.

209, 2022

Clinical trial recruitment challenges

By |September 2nd, 2022|Clinical trial awareness recruitment, Clinical trials|0 Comments

Recruiting participants for clinical trials is fraught with challenges. Factors such as study complexity, logistical concerns (e.g., patient lives two hours from the study site), and patients’ lack of awareness of clinical trials can contribute to significant study delays or cancellations.

2607, 2022

Genomic Testing for HR+/HER2- Breast Cancer

By |July 26th, 2022|Clinical trial awareness recruitment, Clinical trials|Comments Off on Genomic Testing for HR+/HER2- Breast Cancer

Breast cancer (BC) is the most common cancer diagnosed globally, with 330,000 new cases predicted in the United States during 2022. But those numbers don’t account for patients who were previously diagnosed and experience disease recurrence.

107, 2022

Optimizing the Patient Perspective

By |July 1st, 2022|Patient communities, Patient insights|Comments Off on Optimizing the Patient Perspective

As medicine has evolved, so has the role of patients in their medical care. Today’s patients are more active and involved. They have questions and seek answers — from family and friends, medical professionals, online communities, social media, and yes, Dr. Google.

606, 2022

New Treatments for Migraines Sufferers

By |June 6th, 2022|Patient communities, Patient insights|Comments Off on New Treatments for Migraines Sufferers

An estimated 39 million Americans experience migraines — that’s more than 1 in 10 people. People of all ages, including children, can develop this disabling neurological condition. They experience recurring intense throbbing or pulsing head pain, sometimes accompanied by nausea, an aura, and light and sound sensitivities.

1101, 2022

Bladder cancer: What is a survivor?

By |January 11th, 2022|Patient communities, Clinical trial awareness recruitment, Patient insights|1 Comment

Bladder cancer is the fourth most common cancer in men. When detected early, it is considered highly treatable.1 In 2021, about 83,000 people were expected to be diagnosed with bladder cancer (64,280 in men and 19,450 in women).2 Ninety percent of these cancers are urothelial carcinomas (UC), or cancers of the lining of the urinary tract. Unfortunately, UC may also recur.