Online Health Communities Change Patients’ Journeys: A Live Virtual Roundtable
Online Health Communities Change Patients’ Journeys: A Live Virtual Roundtable By Dana Deighton In the fable of the Ugly Duckling, the duckling feels isolated by his differences until he discovers that he [...]
Next Generation Online Health Communities
Next Generation Online Health Communities: Data empowering patients and caregivers improves care and accelerates research By Richard Tsai The World Orphan Drug Congress USA 2020 (WODC 2020) provided four days of powerful [...]
Accelerating Rare Disease Research
Accelerating Rare Disease Research By Richard Tsai COVID-19 has challenged the non-profit arena’s fundraising arm, which is largely based on face-to-face events like galas, runs and walk-a-thons. This limit on the number [...]
COVID-19 and a Future with Fundamental Design Shifts: Incorporating Virtual into Clinical Trials
COVID-19 and a Future with Fundamental Design Shifts: Incorporating Virtual into Clinical Trials By Kathleen Hoffman, PhD, MSPH On a recent Pharma Talk Radio podcast called, The Impact of COVID-19 on Clinical Trials: [...]
Customer Loyalty and Service Insights for the Pharmaceutical Industry
Customer Loyalty and Service Insights for the Pharmaceutical Industry By Dana Deighton “Only nine percent of U.S. consumers believe pharmaceutical and biotechnology companies put patients over profits.” This sentiment, found in the [...]
For Psoriasis Awareness Month: The Psoriasis Support Community on Inspire Talks Treatments
For Psoriasis Awareness Month: The Psoriasis Support Community on Inspire Talks Treatments By Kathleen Hoffman, PhD, MSPH Try to list chronic illnesses that you think have a major effect on the person’s [...]
Patients Discuss and Debate the Medical Outcomes from Generic Formulations
Patients Discuss and Debate the Medical Outcomes from Generic Formulations By Jeff Terkowitz When mature products face the introduction of generics, patients are often considering, or asked to consider, switching their medications. [...]
HEOR: Incorporating the Human Costs and Benefits into Drug Value
HEOR: Incorporating the Human Costs and Benefits into Drug Value By Kathleen Hoffman, PhD, MSPH In a 2007 article, “Pinning Down the Money Value of a Person’s Life,” NY Times reporter Alex [...]
The Bladder Cancer Advocacy Network Support Community on Inspire Talks about Treatments
The Bladder Cancer Advocacy Network Support Community on Inspire Talks about Treatments By Kathleen Hoffman, PhD, MSPH If asked to list the most common cancers in the U.S., most people would include [...]
FDA Finalizes First of Four PFDD Industry Guidances
FDA Finalizes First of Four PFDD Industry Guidances By Marina Ness, MA On June 16th, the FDA released the final version of “Patient-Focused Drug Development: Collecting Comprehensive and Representative Input.” This document, [...]