Clinical Trials and PROs: What Patients with Rare Diseases Say
Clinical Trials and PROs: What Patients with Rare Diseases Say By Kathleen Hoffman, PhD MSPH Challenges to developing clinical trials for rare diseases begin with their rarity – each condition affects [...]
What Members Tell Each Other About Clinical Trials
What Members Tell Each Other About Clinical Trials By Kathleen Hoffman, PhD MSPH "Failing to enroll a sufficient number of subjects in a trial is a long-standing problem"1 but understanding the [...]
Real World Data to Real World Evidence
Real World Data to Real World Evidence By Kathleen Hoffman, PhD MSPH You’ve started a medication, and you feel “off” in some way. How “off” do you have to feel before [...]
“Out of the Blue” – Kidney Cancer
"Out of the Blue"- Kidney Cancer By Kathleen Hoffman, PhD MSPH Of the over 1 million cancers diagnosed each year in the US, around 3 percent are kidney cancers.1 This relatively [...]
What’s the FDA up to on Patient Focused Drug Development (PFDD) these days?
What’s the FDA up to on Patient-Focused Drug Development (PFDD) these days? By Kathleen Hoffman, PhD MSPH Part of the FDA’s mandate in implementing the “21st Century Cures Act” is ensuring [...]
Can We Have Your Attention, Please?
Can We Have Your Attention, Please? By Heather Holder and Odin Soevik Internet users have a lot of experience in ignoring online advertising. The term “banner blindness” appeared around 1998 to [...]
Join the Party…Sponsored Content / Native Advertising!
Join the Party...Sponsored Content / Native Advertising! By Odin Soevik There are two ways to be invited to a party where someone is selling something. Either your host tells you, up [...]
Buzzword Bingo and Sponsored Content/Native Advertising
Buzzword Bingo and Sponsored Content / Native Advertising By Odin Soevik “Buzzword bingo” is a game in which everyone in a meeting gets a one-page grid of today’s business buzzwords. Each [...]
HPV is Not in Scarlet Letters: Cervical Cancer Patients Being Stigmatized
HPV is Not in Scarlet Letters: Cervical Cancer Patients Being Stigmatized By Kathleen Hoffman, PhD, MSPH Imagine being given a diagnosis of cervical cancer. That’s bad enough. Now, imagine that it [...]
Is There Any Way Left To Reach Patients?
Is There Any Way Left To Reach Patients? By Hillary Kuhl As patients rely less on physicians as their ultimate information resource, their treatment decision-making has increased in complexity. Inspire’s most [...]