Real World Data to Real World Evidence

Real World Data to Real World Evidence By Kathleen Hoffman, PhD MSPH You’ve started a medication, and you feel “off” in some way. How “off” do you have to feel before you mention it to your doctor or until you or she sends an Adverse Drug Reaction (ADR) report to the FDA through the MedWatch program? On the other hand, how “off” do you have to feel before mentioning it to your peers in an online health community? A study conducted by Inspire and Stanford University found that people mentioned an ADR for a specific drug [...]

Genetic testing: What patients and caregivers understand and value

Genetic testing: What patients and caregivers understand and value By Richard Tsai There’s been an explosion of information about genes, genetics and genomics since completion of the Human Genome Project in April 2003. Stories about remissions achieved through pharmacogenomics and immunotherapy and disease risk factors identified through genetic testing fill both online and offline media. Today, direct-to-consumer (DTC) genetic testing companies--which make kits available at between $100 and $200-- have huge databases of genetic information. In fact, even if you have never used a kit, you may be able to be identified through these databases if [...]

Boosting Engagement with Inspire Promote: Sponsored Content

Boosting Engagement with Inspire Promote: Sponsored Content By Odin Soevik Last year we created a new Promote offering - Inspire Promote: Sponsored Content. Sponsored Content, a form of native advertising, allows clients to publish long-form, brand-sponsored content with the look and feel of posts within the discussion feed of our communities. (See, Turning Visitors Into Customers: Introducing Sponsored Content On Inspire). Unlike banners or other advertising products, Inspire Promote: Sponsored Content blends almost seamlessly into the feed. Yet we are careful to follow regulatory guidelines that ensure that the content is clearly labeled and not misleading to members and [...]