invisible disease Archives - Inspire Corporate

A dazzle of zebras: Ehlers-Danlos Syndromes

A dazzle of zebras: Ehlers-Danlos Syndromes By Hannah Eccard On their website, The Ehlers-Danlos Society explains why people with Ehlers-Danlos Syndromes (EDS) call themselves zebras. “Medical students have been taught for decades that, ‘When you hear hoofbeats behind you, don’t expect to see a zebra.’ In other words, look for the more common and usual, not the surprising, diagnosis.” 1 People with EDS are the unexpected zebras. This rare connective tissue disorder characterized by joint hypermobility, skin elasticity and tissue fragility has recently, through the efforts of The Ehlers-Danlos Society, become more well known. Unfortunately many people [...]

Video Vignettes: Through Your Own Lens – Living With Invisible Disease

Video Vignettes: Through Your Own Lens - Living With Invisible Disease Looking "well" is a common challenge among people who live with invisible illnesses and chronic disease. Some call themselves “spoonies”: people who hear “but you don’t look sick” throughout their lives, while actually managing serious illness. The term “spoonie” comes from a blog post written in 2010 by Christine Miserandino called The Spoon Theory.1 In this post, Miserandino, who has lupus, described how she was able to help her best friend understand life with a chronic illness. To tell the story briefly: Holding 12 spoons, Christine [...]