Rapid access to deep patient-centered real world data

Inspire Virtual Registry leverages millions of patients across 3,000+ conditions already in the Inspire community. This allows our clients to quickly launch a direct-to patient, siteless virtual registry and follow a specific cohort longitudinally. Get rapid access to fit-for-purpose data sets to conduct observational studies, external comparator arms, accelerate evidence generation, and support post-marketing regulatory commitments.

Why Inspire Virtual Registry?

Inspire’s existing and fast-growing patient population enables life science partners to generate deeper real-world evidence through accelerated recruitment, customized data collection and linkage, and elevated patient engagement. At the same time, patients are empowered to shape the future of research by contributing their medical records and learning from others like them.

Accelerated recruitment

Building the right cohort of patients is easy with our existing patient communities. We also offer accelerated recruitment through 100+ patient advocacy partners. Patients sign up and consent to participate in a few minutes.

Fully managed patient privacy and consent
Direct-to-patient approach without the need for site startup
Custom Inclusion / Exclusion Criteria

Customized data collection & linkage

Inspire Virtual Registry delivers customized real-world data at the patient level. Specify the data elements to extract from medical records – doctors’ notes, narrative text, and more. We curate the dataset and further enhance its value by securely linking to claims data using standard, HIPAA compliant tokenization methods.

End-to-end study plan and protocol development
IRB Management
Flexibility to enable multiple research questions and use cases over time

Elevated patient engagement

Inspire’s patient-centric approach empowers patients to contribute more. Our existing patient communities provide continuous access, enabling prospective collection of patient experience data (PED) and patient reported outcomes (PRO). And, our patients continue to stay engaged and participate beyond the study lifecycle, providing a unique opportunity for evidence dissemination.

PED and PRO
Ability to recontact patients for future studies and events
Evidence dissemination in collaboration with key opinion leaders via Inspire communities