patient-centered data Archives

What Do Patients Wish Their Doctors Knew?

What Do Patients Wish Their Doctors Knew? For the better part of the 21st century, researchers from academia and the pharmaceutical industry have observed, recorded, and attempted to influence the physician-patient power dynamic. As one such study revealed in 2001, both physicians and patients have “power”; but differences in “in-office priorities” – physicians’ focus on efficiency and patients’ on self-advocacy – result in missed opportunities for improved health outcomes. As my colleague, Richard Tsai wrote in Embracing The Patient-Centric Culture, “The challenge for healthcare organizations, be they government or private, is to elevate the perspectives of [...]

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2)

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2) In part 1, Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?, I shared the results of a think tank co-sponsored by the Drug Information Association (DIA) and the Cardiac Safety Research Consortium discussing the use of patient postings on social media for pharmacovigilance. Today's post answers the question: Would Inspire’s patient-generated health discussions be useful for pharmacovigilance? Historically, pharmaceutical companies embraced a medication-focused approach to pharmacovigilance. Now, however, as R&D in the pharmaceutical industry is incorporating patient-centric methodologies in their processes, regulatory guidance is also transforming drug [...]