Melanoma a “fake cancer”? — Public perception and research strides

Melanoma a “fake cancer”? — Public perception and research strides By Kathleen Hoffman, PhD, MSPH In a discussion of melanoma on Inspire, a caregiver said to fellow members: The doctors and drug companies are making tremendous strides in the treatment of this terrible disease!! Her message of hope resonates strongly today. Unfortunately, misconceptions about this cancer linger among the general population. One newly diagnosed patient on Inspire described their confusion: I was recently diagnosed with stage 3C...I honestly always thought melanoma was “fake” cancer, because you just cut it off, right? The fact that people didn’t associate [...]

5 Steps to Creating a Vibrant Online Patient Community: Melanoma Research Alliance’s Melanoma>Exchange on Inspire

5 Steps to Creating a Vibrant Online Patient Community: Melanoma Research Alliance’s Melanoma>Exchange on Inspire By Judy Chandler, MPH, CHES Inspire launched a melanoma patient and caregiver support community in 2014, but was looking for a non-profit partner to contribute melanoma expertise and resources to community members. In 2017, the Melanoma Research Alliance (MRA) started expanding its efforts beyond research to also include patients and caregivers. That’s when the MRA and Inspire joined forces and launched the Melanoma > Exchange Support Community on Inspire. Inspire is a true partner for MRA in our work to better serve [...]

What Do Patients and Caregivers Know about Immunotherapy?

What Do Patients and Caregivers Know about Immunotherapy? Inspire’s Immunotherapy Awareness and Perceptions Survey According to a 2012 study, patient activation means “having the knowledge, skills, and confidence to manage one’s health.”  The study confirmed that better health outcomes are typically associated with greater patient knowledge and activation.1  As the field of oncology continues to embrace personalized medicine with immuno-oncology and immunotherapy, patient activation is essential. Today, in a world with content flooding every single channel and device we own, consumers are either over-informed, or under-informed.  A wide range of information sources, ranging from news outlets to [...]