Inspire Archives - Page 12 of 12

From Research To Action for Patients

From Research To Action for Patients It is exciting to see the results of research providing strong, positive benefits to patients. That was the take-away from a joint presentation made by Inspire and Strongbridge BioPharma at the Pharmaceutical Market Research Conference (PMRC) this month. Last fall, Strongbridge BioPharma engaged Inspire to find the “rarest of the rare”- people who have the exceptionally rare condition, primary periodic paralysis or PPP. There are between 4,000 and 5,000 diagnosed individuals in the US. Finding the Rarest of the Rare for Market Research: Patient Journey Mapping Through In-depth Interviews describes how [...]

Feb 2018By Inspire|0 Comments

Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery

Video Vignettes: Through Their Own Eyes: Heart Bypass Surgery Our hearts start to beat at around a month and a half into pregnancy.1 We may take its constancy for granted until something goes wrong. Worldwide, cardiovascular disease is the leading cause of death with 17.7 million deaths each year.2 Coronary artery disease (CAD), the most common heart disease in the US, is caused by a buildup of plaque in the arteries supplying blood to the heart. These arteries narrow and blood flow to the muscle of the heart is blocked. Heart or chest pain, called angina, and [...]

Feb 2018By Inspire|0 Comments

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2)

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2) In part 1, Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?, I shared the results of a think tank co-sponsored by the Drug Information Association (DIA) and the Cardiac Safety Research Consortium discussing the use of patient postings on social media for pharmacovigilance. Today's post answers the question: Would Inspire’s patient-generated health discussions be useful for pharmacovigilance? Historically, pharmaceutical companies embraced a medication-focused approach to pharmacovigilance. Now, however, as R&D in the pharmaceutical industry is incorporating patient-centric methodologies in their processes, regulatory guidance is also transforming drug [...]

Oct 2017By Inspire|0 Comments

Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?

Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance? (Part 1) Spontaneous reporting of adverse drug reactions by health care providers has been the keystone of pharmacovigilance. Yet health care providers tend to under-report for a variety of reasons including lack of time, complacency, indifference, fear of medico-legal consequences or their uncertainty of the causal relationship between medication and condition.1 An unexpected opportunity to supplement spontaneous provider reliant reporting may be at hand. Communication about personal health that occurs over the Internet could be a resource for pharmacovigilance. In June 2016, a think tank co-sponsored by the [...]

Oct 2017By Inspire|0 Comments

Video Vignettes: Through Their Own Eyes: Systemic Scleroderma

Video Vignettes: Through Their Own Eyes: Systemic Scleroderma Approximately 300,000 people in the US live with scleroderma; about 100,000 of those people live with a form called systemic scleroderma.1 Scleroderma is a connective tissue disorder involving the fibrous protein called collagen that is found in structures like cartilage, ligaments and tendons, throughout the body. People with scleroderma make too much collagen and it builds up in tissues. Often one of the first symptoms of scleroderma is hardening of the skin. The cause of scleroderma is unknown and there is no cure. It can occur as a localized [...]

Sep 2017By Inspire|0 Comments

Know Your Audience: 4 Tips for Creating Compelling Sponsored Content for Inspire

Know Your Audience: 4 Tips for Creating Compelling Sponsored Content for Inspire Sponsored content or native advertising is advertising that has been integrated into the publisher’s platform so that it does not disrupt the audience’s experience. Unlike banner ads or other advertising, the character of the content matches the native content that the publisher’s audience expects. It has the look and feel of that platform. The result is an almost seamless flow of content for the audience. Creating content that is smooth and harmonious with native content can be challenging when regulations need to be [...]

Aug 2017By Inspire|0 Comments

Video Vignettes: Through Their Own Eyes: Idiopathic pulmonary fibrosis

Video Vignettes: Through Their Own Eyes: Idiopathic pulmonary fibrosis In patients who have pulmonary fibrosis, the moist, elastic lung tissue starts to thicken and scar making it increasingly difficult for blood to get oxygenated. As scarring builds up over time in this progressive disease, the amount of oxygen getting to the brain and other organs of the body significantly diminishes. Idiopathic pulmonary fibrosis is part of a larger group of illnesses called interstitial lung disease (ILD). Idiopathic pulmonary fibrosis (IPF) is a rare subset of this chronic disease. Its cause is unknown, though it can run in [...]

Aug 2017By Inspire|3 Comments

Turning Visitors Into Customers: Introducing Sponsored Content On Inspire

Turning Visitors Into Customers: Introducing Sponsored Content On Inspire Trying to get your company’s content in front of engaged patients and caregivers is a daunting task in the information-overloaded Internet. That’s why it’s important to look for new content discovery strategies. Sponsored Content Sponsored content is becoming the solution for many organizations. Also called native advertising, sponsored content is a form of advertising that is integrated into the publisher’s platform. Whether a written piece, an infographic, or video, it has the look and feel of the content of that platform. Unlike banners or other advertising products that [...]

Aug 2017By Inspire|0 Comments

Video Vignettes: Through Their Own Lens: Living with Sarcoidosis

Video Vignettes: Through Their Own Lens: Living with Sarcoidosis “Imagine being in a crowd and wishing you were invisible, but you’re marked, and there is nowhere you can hide.” Shanene Higgins wrote that in her essay “Marked: My scars remind me of my purpose,” part of Inspire’s 2017 Experts by Experience eBook. Higgins has sarcoidosis, an inflammatory disease that can cause rashes and sores on the skin. Part of Higgins’s experience was bullying: “There were many times when people would stop and stare at me as if I was a fish in a fishbowl…One afternoon while walking…I [...]

Aug 2017By Inspire|1 Comment