Bladder cancer: What is a survivor?

Bladder cancer: What is a survivor? By Kathleen Hoffman, PhD, MSPH Bladder cancer is the fourth most common cancer in men. When detected early, it is considered highly treatable.1 In 2021, about 83,000 people were expected to be diagnosed with bladder cancer (64,280 in men and 19,450 in women).2 Ninety percent of these cancers are urothelial carcinomas (UC), or cancers of the lining of the urinary tract. Unfortunately, UC may also recur. For example, consider that about 50% of all bladder cancers are discovered while the cancer is only in the inner layer of the bladder wall [...]

The Bladder Cancer Advocacy Network Support Community on Inspire Talks about Treatments

The Bladder Cancer Advocacy Network Support Community on Inspire Talks about Treatments By Kathleen Hoffman, PhD, MSPH If asked to list the most common cancers in the U.S., most people would include breast, lung, skin, and prostate cancers. So you may be surprised to learn that the fourth most common cancer among men in the U.S. is bladder cancer.1 The estimate for 2020 is that new cases of bladder cancer will be diagnosed in 81,400 people.1 It’s the sixth most common cancer overall, and while 3 out of 4 cases affect men, women are more likely to [...]

Learning from patients to improve their experiences with treatments – An Inspire Insights: Discover Case Study

Learning from patients to improve their experiences with treatments - An Inspire Insights: Discover Case Study By Monica St. Claire Around 68,000 people in the US are diagnosed with bladder cancer each year.  Since 2007, in partnership with the Bladder Cancer Advocacy Network, Inspire has been providing support to patients and caregivers living with bladder cancer. Today, the Bladder Cancer Advocacy Network Support Community on Inspire has over 32,000 members and an additional 21,320 worldwide visitors per month. As the leading social networking site in the US, Inspire is home to [...]

What Do Patients and Caregivers Know about Immunotherapy?

What Do Patients and Caregivers Know about Immunotherapy? Inspire’s Immunotherapy Awareness and Perceptions Survey According to a 2012 study, patient activation means “having the knowledge, skills, and confidence to manage one’s health.”  The study confirmed that better health outcomes are typically associated with greater patient knowledge and activation.1  As the field of oncology continues to embrace personalized medicine with immuno-oncology and immunotherapy, patient activation is essential. Today, in a world with content flooding every single channel and device we own, consumers are either over-informed, or under-informed.  A wide range of information sources, ranging from news outlets to [...]