How Do You Elevate Your Patient Insights Strategy?
How Do You Elevate Your Patient Insights Strategy? By Kathleen Hoffman, PhD MSPH You know what you want to say about your product, but are you still looking for the right way to say it? Successful DTC advertising relies on finding language that resonates with target patients. A recent study demonstrated just how profoundly a choice of words affects patient treatment decisions. A survey cited in the [...]
Recruiting Rare and Oncological Patients? Top Pharma Turns to Inspire
Recruiting Rare and Oncological Patients? Top Pharma Turns to Inspire By Jeff Terkowitz Did you know that 80 percent of Inspire’s members agreed to receive information from Inspire about clinical trials? That’s about 1.6 million members with conditions in oncology, rare diseases, autoimmune disorders and chronic conditions who want to know if and when trials affecting their condition might be recruiting. Pfizer needed to find rare patients [...]
Good News about Lung Cancer? Thanks to Bench Science and Pharma
Good News about Lung Cancer? Thanks to Bench Science and Pharma By Kathleen Hoffman, PhD, MSPH Targeted therapies, monoclonal antibodies, and immune checkpoint inhibitors are the good news - making a significant difference in lung cancer mortality, a new study states. Published in The New England Journal of Medicine, the report said, “Mortality from NSCLC decreased even faster than the incidence ...and this decrease was associated with [...]
Launching a New Drug During a Pandemic? Successful Launches Included a Rapid Pivot to Social Media
Launching a New Drug During a Pandemic? Successful Launches Included a Rapid Pivot to Social Media By Paul Nash How has the pandemic affected pharmaceutical product launches? Experts say that social media and research have been the key factors for this year’s successful launches. In a webcast on the PharmaVoice Webcast Network, “The State of Product Launch During and Post COVID-19,” speakers Maya Desai, Director at Guidehouse; [...]
How Has COVID-19 Impacted Patients with Rare Conditions?
How Has COVID-19 Impacted Patients with Rare Conditions? By Judy Chandler Over 600,000 Inspire members are affected by rare conditions. As a vital partner to 40 rare disease non-profit advocacy organizations, Inspire’s rare disease patient and caregiver members represent over 3,000 rare conditions. Serving as a common point across these diverse conditions, Inspire was uniquely positioned to learn how rare disease communities were being affected by COVID-19. [...]
October 13th is Metastatic Breast Cancer Awareness Day
October 13th is Metastatic Breast Cancer Awareness Day By Kathleen Hoffman, PhD, MSPH The symbol for breast cancer awareness is a pink ribbon. But for people with the disease, one month and a pink ribbon are not enough. Many cancer drugs are evaluated by the amount of time the treatment delays progression, and despite new treatments and genetic advances, the 5-year survival rate for advanced or metastatic [...]
Patients Are The Best Resource For Defining Study Endpoints
Patients Are The Best Resource For Defining Study Endpoints By Robert Gardner In September, the World Orphan Drug Congress USA Fall Webinar series opened with a program called: “Understanding the Novel Challenges in Rare Disease Development: Perspectives From Experts.” They took an audience poll, asking attendees to identify their “biggest challenge in rare disease studies” from five choices, including competition for patients; lack of understanding of disease [...]
September is Blood Cancer Awareness Month
September is Blood Cancer Awareness Month By Kathleen Hoffman, PhD, MSPH The term “blood cancer” encompasses so many complex disorders that Inspire has several support communities focused on blood cancers, including groups for Leukemia, Lymphoma, Myeloma, and Myelodysplastic Syndromes (MDS). According to Inspire’s partner, the Leukemia Research Foundation, these four blood cancers impact about 1.3 million people in the United States and their families.1 This year there [...]
For Ovarian Cancer Awareness Month: Teal Sisters Support Each Other and Discuss Treatments on Inspire
For Ovarian Cancer Awareness Month: Teal Sisters Support Each Other and Discuss Treatments on Inspire By Kathleen Hoffman, PhD, MSPH September is Ovarian Cancer Awareness Month. The Ovarian Cancer Research Alliance (OCRA), Inspire’s partner, is holding its 2020 National Conference, “Uniting for Hope,” virtually from Sept. 29 - Oct. 2 this year. One of the conference’s popular gatherings is always “Ask the Experts,” Q&A sessions between attendees [...]
Online Health Communities Change Patients’ Journeys: A Live Virtual Roundtable
Online Health Communities Change Patients’ Journeys: A Live Virtual Roundtable By Dana Deighton In the fable of the Ugly Duckling, the duckling feels isolated by his differences until he discovers that he is a swan too. Patients with undiagnosed conditions also feel isolated, with some even describing not being believed by their doctors or even their friends or families. One member with scleroderma shared her story: I spent [...]