Research reveals barriers to genomic medicine for people with EDS
Research shows people with Ehlers-Danlos syndrome face barriers to accessing genomic medicine. Social-structural barriers like long wait times to see a geneticist top the list.
Inspire announces three key hires to support continued growth and expansion
Inspire is excited to announce the hiring of Jen Moyer, Rob Ramirez, and Amy DeMaria as the newest members of the leadership team. These key hires will support Inspire’s continued growth and ensure successful expansion of the company’s business portfolio and product offerings in the healthcare commercial insights and real world evidence spaces.
Inspire partners with leading pharmaceutical manufacturer to provide insight into Black and transgender patients’ experience with cosmetic medicine
Demand for cosmetic procedures has risen sharply in the U.S. However, there is a lack of data around specific experiences and unmet needs among diverse populations including Black and transgender individuals.
Inspire announces new partnership with the Autoimmune Association
Inspire is pleased to announce that it has partnered with the Autoimmune Association to launch a new community for patients living with autoimmune diseases and their caregivers.
Insights into patients living with seasonal affective disorder (SAD)
Seasonal affective disorder (SAD), a mental health condition triggered by seasonal changes, affects about 10 million American adults (3% of the general population). An additional 10-20% of people experience mild symptoms of SAD. Those with seasonal depression may reach out to their healthcare provider for help with the symptoms. But statistics and clinical visits do not always showcase the realities of how SAD truly affects people.
Research reveals interstitial cystitis triggers and frustrations
The Interstitial Cystitis Association (ICA) estimates that as many as 8 million women and 4 million men in America live with interstitial cystitis, also known as bladder pain syndrome or IC/BPS. Various treatment pathways exist, but they are not guaranteed to work for all individuals that are living with the condition.
Taking patient market research to the next level with PatientJourney+
The Inspire community is the largest repository of fully consented patient-created health content on the internet. By participating, Inspire members support one another through their health journeys, and often help to accelerate medical breakthroughs.
Clinical trial recruitment challenges
Recruiting participants for clinical trials is fraught with challenges. Factors such as study complexity, logistical concerns (e.g., patient lives two hours from the study site), and patients’ lack of awareness of clinical trials can contribute to significant study delays or cancellations.
Prostate Cancer: A Couple’s Disease
Prostate cancer impacts not just the physical health of the individual but also their emotional and social health. A study of patients and their partners compared satisfaction with treatment, worry about cancer, and the consequences of treatment on their relationship.
Genomic Testing for HR+/HER2- Breast Cancer
Breast cancer (BC) is the most common cancer diagnosed globally, with 330,000 new cases predicted in the United States during 2022. But those numbers don’t account for patients who were previously diagnosed and experience disease recurrence.