About Inspire

This author has not yet filled in any details.
So far Inspire has created 18 blog entries.

New Treatments for Migraines Sufferers

An estimated 39 million Americans experience migraines — that’s more than 1 in 10 people. People of all ages, including children, can develop this disabling neurological condition. They experience recurring intense throbbing or pulsing head pain, sometimes accompanied by nausea, an aura, and light and sound sensitivities.

Jun 2022By |Comments Off on New Treatments for Migraines Sufferers

Inspire collaborates with Boston Children’s Hospital and the Ehlers Danlos Society on study about rare disease patient access to genomic medicine

Inspire is pleased to announce that it has partnered with the Autoimmune Association to launch a new community for patients living with autoimmune diseases and their caregivers. 

Feb 2022By |0 Comments

Redefining Life as a Patient and Caregiver : Experts by Experience 2018

Redefining Life as a Patient and Caregiver : Experts by Experience 2018 Parenting and caring for a child with a medical condition challenges Erin Moriarty Wade. She writes, “I know that the patient experience begins long before you meet the doctor. I know that sometimes even parking your car can become a big part of that experience–especially when you have to park at a distance with a cranky toddler in a stroller, and a child hobbling in pain. I understand the fear that patients may feel, and I appreciate the role of the oft-forgotten caregiver.” Early [...]

Apr 2019By |0 Comments

1.6 Million People Accelerate Medical Progress

1.6 Million People Accelerate Medical Progress When Brian Loew founded Inspire in 2005, he never dreamed of its impact on members, on himself and on the people who worked with him. “When someone tells a story about how, by connecting with others, they learned that a certain treatment was possible. And they credit being alive because of that -- it makes you realize that this is not just a matter of 1.6 million people -- but a matter of a ton of individual lives that are affected by what you created.”1 On April 3, Loew shared this [...]

Apr 2019By |0 Comments

Finding Patients With Rare Cancers Quickly

Finding Patients with Rare Cancers Quickly Almost one-third of all cancer deaths are caused by rare cancers but rare cancers represent only between 23.4% and 27% of all cancer cases.1 Between 25 and 30 million Americans and around 30 million people in the European Union live with rare diseases.2 Rare cancers are classified under rare diseases and are defined by the EU Society of Medical Oncology as having an incidence of less than six occurring per 100,000 persons per year.3 The National Cancer Institutes define the incidence of rare cancers as 15 per 100,000 persons per year.4 [...]

Jan 2018By |0 Comments

In new report, Inspire examines clinical trials, genetic testing

In new report, Inspire examines clinical trials, genetic testing Editor’s note: Last week, Inspire released, “Insights from Engaged Patients: An Analysis of the Third Annual Inspire Survey”. Over the past three years, the Inspire Annual Survey has captured insights of over 30,000 respondents, representing more than seven million data points. In the following excerpt from the report executive summary, Dave Taylor, Inspire’s Senior Director of Research, discusses some of the findings from this year’s survey, and its implications for industry. While the proverbial needle has not moved much during this time across many of the attributes we [...]

Dec 2017By |0 Comments