patient engagement

Find Your SMART: A blueprint for patient engagement

Find Your SMART: A blueprint for patient engagement The drug development process has historically siloed pharmaceutical companies and patients until the time comes for clinical trials. Drug development is a complex, expensive process that requires a lot of expertise. But patients are experts on their own experience of illness and their insights [...]

Rare Disease and Social Media: Making Connections

Rare Disease and Social Media: Making Connections Being Alone and Disempowered Keeping illness, pain and suffering a secret for years is the reality for many people with rare diseases.  Now, on social media, they are writing about it, sharing the desperation and the hurt.  And they are finding each other in [...]

Embracing The Patient-Centric Culture

Embracing The Patient-Centric Culture American physicist and philosopher, Thomas Kuhn said that throughout history, science goes through periods of “normal science” and change.  In periods of “normal science,” everyone is “committed to the same rules and standards for scientific practice,” Kuhn wrote in his 1962 book, The Structure of Scientific Revolutions.  Change occurs [...]