clinical trials

Virtual Patient Engagement: Inspire and the NIH Clinical Center

Virtual Patient Engagement:  Inspire and the NIH Clinical Center Engagement with patients and caregivers is at the heart of Inspire’s community of cancer, chronic, and rare disease support groups.  While there are many ways Inspire can help the industry engage with a targeted patient population, virtual patient engagement  and authoritative expert content [...]

Introducing Inspire Recruit

Introducing Inspire Recruit Commonly discussed statistics on patient enrollment and retention in clinical research paint a bleak picture. Clinical trial on-time completion rates are low--only around 20%. This is due in part to the fact that 85% of clinical trials fail to retain enough patients.1 The causes may lie in the low [...]

Finding Patients With Rare Cancers Quickly

Finding Patients with Rare Cancers Quickly Almost one-third of all cancer deaths are caused by rare cancers but rare cancers represent only between 23.4% and 27% of all cancer cases.1 Between 25 and 30 million Americans and around 30 million people in the European Union live with rare diseases.2 Rare cancers are [...]

In new report, Inspire examines clinical trials, genetic testing

In new report, Inspire examines clinical trials, genetic testing Editor’s note: Last week, Inspire released, “Insights from Engaged Patients: An Analysis of the Third Annual Inspire Survey”. Over the past three years, the Inspire Annual Survey has captured insights of over 30,000 respondents, representing more than seven million data points. In the [...]

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective

Patient Engagement Leadership Series Part 2: Designing from the Patient Perspective The patient perspective is based in the lived experience of illness.  Entering into patient-centered or patient informed medication development means understanding that this worldview cannot be provided independently by researchers or clinicians.1 At Sanofi, patient perspectives have been integrated into clinical [...]

Patient Engagement Leadership Series Part 1: Clinical Trial Participants Are Medical Heroes

Patient Engagement Leadership Series Part 1:  Clinical Trial Participants Are Medical Heroes “I think a hero is any person really intent on making this a better place for all people.”  ~ Maya Angelou In Embracing the Patient Centric Culture, I discussed the paradigm shift facing healthcare. “Instead of doing things for [...]

Find Your SMART: A blueprint for patient engagement

Find Your SMART: A blueprint for patient engagement The drug development process has historically siloed pharmaceutical companies and patients until the time comes for clinical trials. Drug development is a complex, expensive process that requires a lot of expertise. But patients are experts on their own experience of illness and their insights [...]