Poster: Partnership and Progress for a Rare Disease Community–How Inspire and HNF collaborated to grow the Charcot-Marie-Tooth community and accelerate medical progress Research Poster: Partnership and Progress for a Rare Disease Community–How Inspire and HNF collaborated to grow the Charcot-Marie-Tooth community and accelerate medical progress National Institutes of Health: Rare Disease DayJun 2019
Three randomized controlled trials evaluating the impact of “spin” in health news stories reporting studies of pharmacologic treatments on patients’/caregivers’ interpretation of treatment benefit News Articles, Research Three randomized controlled trials evaluating the impact of “spin” in health news stories reporting studies of pharmacologic treatments on patients’/caregivers’ interpretation of treatment benefit BMC MedicineJun 2019
Early Detection of Adverse Drug Reactions in Social Health Networks: A Natural Language Processing Pipeline for Signal Detection News Articles, Research Early Detection of Adverse Drug Reactions in Social Health Networks: A Natural Language Processing Pipeline for Signal Detection JMIR Public Health and SurveillanceJun 2019
Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery? Research Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery? Journal of Oncology PracticeAug 2018
Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers Research Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers Drug Information AssociationJun 2018
Plain-language medical vocabulary for precision diagnosis News Articles, Research Plain-language medical vocabulary for precision diagnosis nature geneticsApr 2018
Detecting Chemotherapeutic Skin Adverse Reactions in Social Health Networks Using Deep Learning News Articles, Research Detecting Chemotherapeutic Skin Adverse Reactions in Social Health Networks Using Deep Learning JAMA OncologyMar 2018
Understanding Disease Burden and Outcomes from the Patient’s Perspective Using Disease-Focused Internet Forum Data Research Understanding Disease Burden and Outcomes from the Patient’s Perspective Using Disease-Focused Internet Forum Data InspireMay 2017
