inspireOct 2020Patient Reflections on Their Journey: How Social Media Health Communities Affect Their ExperiencesVideos and webinarsPatient Reflections on Their Journey: How Social Media Health Communities Affect Their Experiences
Kathleen Hoffman, PhD, MSPHSep 2020Rare Disease Fact Sheet 2020InfographicRare Disease Fact Sheet 2020
inspireJul 2020How has COVID-19 impacted chronically ill patients?Videos and webinarsHow has COVID-19 impacted chronically ill patients?
inspireFeb 2020An Im-patient Voice: Transforming Real World Data from Patients into Real World EvidenceVideos and webinarsAn Im-patient Voice: Transforming Real World Data from Patients into Real World Evidence
Food and Drug AdministrationOct 2019Assessment of public and patient online comments in social media and food and drug administration archival data. A pilot qualitative analysisResearchAssessment of public and patient online comments in social media and food and drug administration archival data. A pilot qualitative analysis
National Institutes of Health: Rare Disease DayJun 2019Poster: Partnership and Progress for a Rare Disease Community–How Inspire and HNF collaborated to grow the Charcot-Marie-Tooth community and accelerate medical progressResearchPoster: Partnership and Progress for a Rare Disease Community–How Inspire and HNF collaborated to grow the Charcot-Marie-Tooth community and accelerate medical progress
inspireJun 2019A Hopeful Mindset: Patient Insights on Clinical TrialsVideos and webinarsA Hopeful Mindset: Patient Insights on Clinical Trials
inspireFeb 2019Diversity in Clinical Trials: Patient and Caregiver PerspectivesVideos and webinarsDiversity in Clinical Trials: Patient and Caregiver Perspectives
inspireNov 2018What Matters to People Impacted by Rare Disease: An Inspire-FDA CollaborationVideos and webinarsWhat Matters to People Impacted by Rare Disease: An Inspire-FDA Collaboration
Journal of Oncology PracticeAug 2018Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery?ResearchCritical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery?
Drug Information AssociationJun 2018Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregiversResearchCurrent genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers
inspireJun 2018Poster: Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregiversPoster: Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers
ScienceDirectDec 2017Enabling social listening for cardiac safety monitoring: Proceedings from a drug information association–cardiac safety research consortium cosponsored think tankResearchEnabling social listening for cardiac safety monitoring: Proceedings from a drug information association–cardiac safety research consortium cosponsored think tank
InspireMay 2017Understanding Disease Burden and Outcomes from the Patient’s Perspective Using Disease-Focused Internet Forum DataResearchUnderstanding Disease Burden and Outcomes from the Patient’s Perspective Using Disease-Focused Internet Forum Data
inspireDec 2016Inspire’s community of rare disease support groups: Information and supportVideos and webinarsInspire’s community of rare disease support groups: Information and support
inspireDec 2016Why Nonprofit Patient Advocacy Organizations Partner with InspireVideos and webinarsWhy Nonprofit Patient Advocacy Organizations Partner with Inspire
inspireDec 2016Managing the emotional toll of cancerVideos and webinarsManaging the emotional toll of cancer
inspireDec 2016Building successful online support groupsVideos and webinarsBuilding successful online support groups
