inspireOct 2020 Patient Reflections on Their Journey: How Social Media Health Communities Affect Their ExperiencesVideos and webinars Patient Reflections on Their Journey: How Social Media Health Communities Affect Their Experiences
Kathleen Hoffman, PhD, MSPHSep 2020 Rare Disease Fact Sheet 2020Infographic Rare Disease Fact Sheet 2020
inspireJul 2020 How has COVID-19 impacted chronically ill patients?Videos and webinars How has COVID-19 impacted chronically ill patients?
inspireFeb 2020 An Im-patient Voice: Transforming Real World Data from Patients into Real World EvidenceVideos and webinars An Im-patient Voice: Transforming Real World Data from Patients into Real World Evidence
Food and Drug AdministrationOct 2019 Assessment of public and patient online comments in social media and food and drug administration archival data. A pilot qualitative analysisResearch Assessment of public and patient online comments in social media and food and drug administration archival data. A pilot qualitative analysis
National Institutes of Health: Rare Disease DayJun 2019Poster: Partnership and Progress for a Rare Disease Community–How Inspire and HNF collaborated to grow the Charcot-Marie-Tooth community and accelerate medical progressResearch Poster: Partnership and Progress for a Rare Disease Community–How Inspire and HNF collaborated to grow the Charcot-Marie-Tooth community and accelerate medical progress
inspireJun 2019 A Hopeful Mindset: Patient Insights on Clinical TrialsVideos and webinars A Hopeful Mindset: Patient Insights on Clinical Trials
inspireFeb 2019 Diversity in Clinical Trials: Patient and Caregiver PerspectivesVideos and webinars Diversity in Clinical Trials: Patient and Caregiver Perspectives
inspireNov 2018 What Matters to People Impacted by Rare Disease: An Inspire-FDA CollaborationVideos and webinars What Matters to People Impacted by Rare Disease: An Inspire-FDA Collaboration
Journal of Oncology PracticeAug 2018Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery?Research Critical Choices: What Information Do Patients Want When Selecting a Hospital for Cancer Surgery?
Drug Information AssociationJun 2018 Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregiversResearch Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers
inspireJun 2018Poster: Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers Poster: Current genetics literacy, perspectives, and experiences of cancer, chronic, and rare disease patients and caregivers
ScienceDirectDec 2017 Enabling social listening for cardiac safety monitoring: Proceedings from a drug information association–cardiac safety research consortium cosponsored think tankResearch Enabling social listening for cardiac safety monitoring: Proceedings from a drug information association–cardiac safety research consortium cosponsored think tank
InspireMay 2017 Understanding Disease Burden and Outcomes from the Patient’s Perspective Using Disease-Focused Internet Forum DataResearch Understanding Disease Burden and Outcomes from the Patient’s Perspective Using Disease-Focused Internet Forum Data
inspireDec 2016 Inspire’s community of rare disease support groups: Information and supportVideos and webinars Inspire’s community of rare disease support groups: Information and support
inspireDec 2016 Why Nonprofit Patient Advocacy Organizations Partner with InspireVideos and webinars Why Nonprofit Patient Advocacy Organizations Partner with Inspire
inspireDec 2016 Managing the emotional toll of cancerVideos and webinars Managing the emotional toll of cancer
inspireDec 2016 Building successful online support groupsVideos and webinars Building successful online support groups
