Search
Generic filters
Exact matches only
Filter by Custom Post Type
Filter by Portfolio Categories
News Articles
Patient Reported Outcomes in Online Communications on Statins, Memory, and Cognition: Qualitative Analysis Using Online Communities
In drug development clinical trials, there is a need for balance between restricting variables by setting enrollment criteria and representing the more diverse patient population that may use a product once it is approved. Although recent policy initiatives focusing on inclusion of historically underrepresented groups are being implemented, barriers still remain. [by. Farris Timimi; Sara Ray; Erik Jones; Lee Aase; Kathleen Hoffman]
Read More
Infusing Change – Experts by Experience
What if I told you the hardest thing about living with a genetic bleeding disorder, like hemophilia, isn’t the joint damage, the surgeries or any of the other physical hurdles? [by Justin McClanahan]
Read More
Dear Doctor: Hope and Options – Experts by Experience
It was two weeks before Christmas and just days before both our birthdays. We had been married only four months, and it would be our very first birthday and holiday celebration together. I had been thinking about my life as a wife – married life – with children, a yard, flower beds, maybe even a vegetable garden!. [by Tiffany Kairos]
Read More
Giving patients a sense of belonging
Clinical research professional and patient advocate Kristina Wolfe tells us how pharma can collaborate better with patients and give them a place in the healthcare conversation.
Read More
Finding Gems in the Rubble – Experts by Experience
It was two weeks before Christmas and just days before both our birthdays. We had been married only four months, and it would be our very first birthday and holiday celebration together. I had been thinking about my life as a wife – married life – with children, a yard, flower beds, maybe even a vegetable garden!. [by Tiffany Kairos]
Read More
Empathetic Doctors Make Empowered Patients – Experts by Experience
I watched intently as my neurologist – who I had only met thirty seconds before – settled into his chair in the exam room. Upbeat and cheerful, he had a smile on his face, which is just what I needed at that moment of vulnerability. [by Chris Anselmo]
Read More
Building our own community for an ultra-rare disease
Bo Bigelow shares the story of his daughter Tess, who has an ultra-rare genetic disorder with only 51 known cases in the world.
Read More
When the Fearful become Fearless – Experts by Experience
The drip-drip-dripping of the sink in the radiology room echoed loudly in my brain as I waited for the pathologist. I just had a biopsy done for two spots on my neck—one suspected to be cancerous. [by Carly Flumer]
Read More
This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself
For 11 years, Doug Lindsay was bedridden — until he came up with a cure for his condition and a surgery that helped him get back on his feet. [by Theresa Braine]
Read More
This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself
Doug Lindsay was 21 and starting his senior year at Rockhurst University, a Jesuit college in Kansas City, Missouri, when his world imploded. After his first day of classes, the biology major collapsed at home on the dining room table, the room spinning around him. [by Ryan Prior]
Read More
Loading...