On the podcast today, is Brian Loew, the founder and CEO of Inspire. Brian created Inspire 15 years ago with a goal of accelerating clinical trial recruitment, using safe, trusted online social networks, organized by medical condition for patients and their caregivers. Today Inspire has 110 health association partners and over 2 million members. I hope you’ll enjoy our conversation with Brian on “People Always, Patients Sometimes”. [By Spencer Health Solutions]
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As part of our Patients Insights series, the founder and CEO of Motherhood Understood shares her experience of postpartum depression, talks about the power of peer support, and explains what the wider healthcare community could do to play their part. [by Amanda Barrell]
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The pilot project of a new HealthJourney program being developed by healthcare social network Inspire is all-virtual recruitment for a clinical research study being conducted in partnership with Pfizer, the Manton Center for Orphan Disease Research at Boston Children’s Hospital (BCH), and Citizen Genetics. The study is endeavoring to identify people in families with a history of autoimmune disease who carry “super-genes,” variants that make them resilient to lung cancer progression, according to Richard Tsai, Inspire’s senior vice president of marketing. [By Deborah Borfitz]
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More than 82% of American doctors say they believe patients with significant disabilities have a worse quality of life than people who don't have disabilities, according to a new study. Those negative perceptions can have big impacts on the quality of care patients with disabilities receive. [By Lauren Kent]
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Ella Balasa says she owes her life to the experimental phage therapy she was able access in no small part thanks to her scientific background. Her mission, she told pharmaphorum, is to ensure everyone has the knowledge and power they need to navigate their own healthcare journey, no matter where they are from or what they do. [by Amanda Barrell]
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Special panel edition of the Amplifying Scientific Innovation Video Podcast that will focus on innovative approaches for optimizing clinical trial diversity during the JP Morgan Healthcare Conference, which is the largest and most informative healthcare investment symposium in the industry. [Moderated by Dr. Sophia Ononye-Onyia]
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Inspire is an organization that has developed and provides an online community for health that connects patients and caregivers in a safe permission-based manner. The online network allows members to connect around the globe to serve as resources for one another, sharing health information, and providing support without regard to location, background or status. [The Journal of Precision Medicine]
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Amanda Barrell speaks to Alfred Samuels on his experience of prostate cancer and diversifying clinical trials to include the Black, Asian and minority ethnic (BAME) community. [by Amanda Barrell]
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Greg and Brian talk about what it takes to keep an online patient community thriving for over 15 years, and how Inspire has become an invaluable resource for patients to channel their efforts into advancing science. [Data Points with Greg Matthews]
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