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An Invisible Illness – Experts by Experience
I was 48 years old when I first encountered serious illness – I was diagnosed with breast cancer. It came as surprise since no one in my family had breast cancer. I needed a mastectomy and underwent six months of chemotherapy – the toughest 6 months in my life! [by Ingegerd Enscoe]
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Learning from online patient peer support groups
Online patient communities have become a staple part of the healthcare landscape in recent years, presenting the sector with ever greater opportunities to identify, understand and tackle unmet need.
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Patient Reported Outcomes in Online Communications on Statins, Memory, and Cognition: Qualitative Analysis Using Online Communities
In drug development clinical trials, there is a need for balance between restricting variables by setting enrollment criteria and representing the more diverse patient population that may use a product once it is approved. Although recent policy initiatives focusing on inclusion of historically underrepresented groups are being implemented, barriers still remain. [by. Farris Timimi; Sara Ray; Erik Jones; Lee Aase; Kathleen Hoffman]
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Patient Insights: Colorectal Cancer
Event planner and colorectal cancer survivor Kim Hall-Jackson tells us how she hopes to improve rates of diagnosis, help people through their journeys and make the voices in the patient community more diverse.
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Knowledge = Power = Action – Experts by Experience
In 2001, at the age of three, my primary focus in life was watching Powerpuff Girls–and keeping my one-year old brother from drooling on my collection of stuffed animals. Not surprisingly, I didn’t notice when my dad started acting strange. [by Taylor Kane]
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Zero Harm: Why it Matters to Me – Experts by Experience
A week ago, while at work, Dad (a.k.a. my father-in-law) had bumped his head hard. It was only when he had to sit down because he felt a sudden coldness on his head, that he drove – after work – to my brother-in-law’s home so they could all go to the emergency room (ER). It’s a family trip whenever they need medical care because they cannot communicate in English. [by Soojin Jun]
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Infusing Change – Experts by Experience
What if I told you the hardest thing about living with a genetic bleeding disorder, like hemophilia, isn’t the joint damage, the surgeries or any of the other physical hurdles? [by Justin McClanahan]
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Dear Doctor: Hope and Options – Experts by Experience
It was two weeks before Christmas and just days before both our birthdays. We had been married only four months, and it would be our very first birthday and holiday celebration together. I had been thinking about my life as a wife – married life – with children, a yard, flower beds, maybe even a vegetable garden!. [by Tiffany Kairos]
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Giving patients a sense of belonging
Clinical research professional and patient advocate Kristina Wolfe tells us how pharma can collaborate better with patients and give them a place in the healthcare conversation.
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Finding Gems in the Rubble – Experts by Experience
It was two weeks before Christmas and just days before both our birthdays. We had been married only four months, and it would be our very first birthday and holiday celebration together. I had been thinking about my life as a wife – married life – with children, a yard, flower beds, maybe even a vegetable garden!. [by Tiffany Kairos]
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