INSPIRE IN THE NEWS
Infusing Change – Experts by Experience
October 4, 2019
Dear Doctor: Hope and Options – Experts by Experience
September 20, 2019
Giving patients a sense of belonging
September 18, 2019
Finding Gems in the Rubble – Experts by Experience
September 6, 2019
In drug development clinical trials, there is a need for balance between restricting variables by setting enrollment criteria and representing the more diverse patient population that may use a product once it is approved. Although recent policy initiatives focusing on inclusion of historically underrepresented groups are being implemented, barriers still remain. [by. Farris Timimi; Sara Ray; Erik Jones; Lee Aase; Kathleen Hoffman]
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What if I told you the hardest thing about living with a genetic bleeding disorder, like hemophilia, isn’t the joint damage, the surgeries or any of the other physical hurdles? [by Justin McClanahan]
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It was two weeks before Christmas and just days before both our birthdays. We had been married only four months, and it would be our very first birthday and holiday celebration together. I had been thinking about my life as a wife – married life – with children, a yard, flower beds, maybe even a vegetable garden!. [by Tiffany Kairos]
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Clinical research professional and patient advocate Kristina Wolfe tells us how pharma can collaborate better with patients and give them a place in the healthcare conversation.
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It was two weeks before Christmas and just days before both our birthdays. We had been married only four months, and it would be our very first birthday and holiday celebration together. I had been thinking about my life as a wife – married life – with children, a yard, flower beds, maybe even a vegetable garden!. [by Tiffany Kairos]
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I watched intently as my neurologist – who I had only met thirty seconds before – settled into his chair in the exam room. Upbeat and cheerful, he had a smile on his face, which is just what I needed at that moment of vulnerability. [by Chris Anselmo]
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Bo Bigelow shares the story of his daughter Tess, who has an ultra-rare genetic disorder with only 51 known cases in the world.
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The drip-drip-dripping of the sink in the radiology room echoed loudly in my brain as I waited for the pathologist. I just had a biopsy done for two spots on my neck—one suspected to be cancerous. [by Carly Flumer]
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For 11 years, Doug Lindsay was bedridden — until he came up with a cure for his condition and a surgery that helped him get back on his feet. [by Theresa Braine]
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Doug Lindsay was 21 and starting his senior year at Rockhurst University, a Jesuit college in Kansas City, Missouri, when his world imploded. After his first day of classes, the biology major collapsed at home on the dining room table, the room spinning around him. [by Ryan Prior]
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