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Empowering People with ‘Super Genes’ to Help Unlock New Treatment Pathways
Living among us today are people who carry “super genes” with variants that make them resilient to certain diseases. Some successful medicines mimic these genes, such as a new bone-builder that is based on families with genetically strong bones. [by Breakthroughs Staff]
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Inspire introduces program to foster research collaboration
The Inspire Research Accelerator is designed to let academic researchers anywhere in the world to collaborate with the company. [by Jenni Spinner]
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Dana Deighton: Esophageal Cancer Patient and Persistent Activist For Her Own Survival
Dana Deighton, an esophageal cancer survivor, shares her diagnostic odyssey of false starts and life-threatening detours. [by Steve Smith]
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Inspire accelerating clinical findings through new program with researchers
Inspire Founder/CEO Brian Loew announced a new initiative, the Inspire Research Accelerator, a program to accelerate medical progress by enabling academic researchers around the world--at no cost--to collaborate with Inspire.
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Health Design Podcast featuring Inspire's Dana Deighton
After many years as a caregiver to family members and surviving her own health crisis, Dana thrives on improving and empowering patient communication and connections to drive better health outcomes. [by Health Design Podcast]
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Finding resilience after an HIV diagnosis
Author and journalist John-Manuel Andriote has spent much of his career writing about the impact of HIV/AIDS – a job that became much more personal when he himself was diagnosed in 2005. He tells pharmaphorum about the importance of resilience in coping with a serious illness. [by George Underwood]
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I’m 29 and doing my part to stop COVID-19. Please join me. | Expert Opinion
Many of my peers are living knowing there is a tomorrow, presuming that it is as healthy as it is today. Unfortunately for me, I am living knowing that one day I could end up developing Huntington’s Disease (HD), just like my mom. This means I could slowly deteriorate, both physically and mentally, to the point where I will be unable to do anything independently. [by Seth Rotberg]
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Bringing men out of isolation after a cancer diagnosis
Studies show that men often isolate themselves when diagnosed with cancer – which can have severe impacts on mental health and outcomes. Trevor Maxwell is hoping to address this by creating an online community to bring male cancer patients and survivors together. [by George Underwood]
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Raise Your Voices: Social Network Provides Safe Place for Patients to Share Stories and Influence Research
In this episode, Brian Loew, founder and CEO of online patient portal Inspire, talks about the value to patients and caregivers of providing a safe and trustworthy online social network--a “peaceable kingdom,” as he calls it. [Hosted by: Steve Smith]
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Using data from an online health community to examine the impact of prostate cancer on sleep
Previous epidemiological studies have examined the relationship between sleep disturbances and prostate cancer risk and/or survival 1, 2. However, less has been published about the impact of sleep disturbance on quality of life (QoL) for prostate cancer survivors and their caregivers. [By: Rebecca Robbins, Girardin Jean‐Louis, Nicholas Chanko, Penelope Combs, Nataliya Byrne, Stacy Loeb]
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