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Empathetic Doctors Make Empowered Patients – Experts by Experience
I watched intently as my neurologist – who I had only met thirty seconds before – settled into his chair in the exam room. Upbeat and cheerful, he had a smile on his face, which is just what I needed at that moment of vulnerability. [by Chris Anselmo]
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Building our own community for an ultra-rare disease
Bo Bigelow shares the story of his daughter Tess, who has an ultra-rare genetic disorder with only 51 known cases in the world.
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When the Fearful become Fearless – Experts by Experience
The drip-drip-dripping of the sink in the radiology room echoed loudly in my brain as I waited for the pathologist. I just had a biopsy done for two spots on my neck—one suspected to be cancerous. [by Carly Flumer]
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This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself
For 11 years, Doug Lindsay was bedridden — until he came up with a cure for his condition and a surgery that helped him get back on his feet. [by Theresa Braine]
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This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself
Doug Lindsay was 21 and starting his senior year at Rockhurst University, a Jesuit college in Kansas City, Missouri, when his world imploded. After his first day of classes, the biology major collapsed at home on the dining room table, the room spinning around him. [by Ryan Prior]
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Understanding muscular dystrophy
Chris Anselmo, who has a rare form of muscular dystrophy, hopes to educate pharma on the patient journey and help new patients cope with a life-changing diagnosis. We spoke to him to find out more.
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Hope for the Best, and Plan for the Worst–Experts by Experience
Life, as I knew it, was crashing down. I was sitting with my wife in the oncologist’s office and had just been diagnosed with stage 4 pancreatic cancer. But, I was about to experience some of the most optimistic and hopeful words I had ever heard. [by Allan Butler]
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If Remission is the Goal, Why Do I Still Feel Bad? Experts by Experience
My life took an unexpected turn after I was diagnosed with inflammatory bowel disease (IBD). I was lost, trying to navigate the nature of this new disease, this new identity, in a new college where no one seemed to understand.
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A Good Night’s Sleep – Experts by Experience
I was diagnosed with lymphedema last year, while undergoing treatment for pain and swelling issues with my right ankle, knee, and leg. After going over the examination and test results, the doctor asked me about my sleep quality and habits.
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Spin in Health News Affects Patients' Views on Treatments
When health news stories misrepresent study findings, patients and caregivers are more likely to view the treatments as beneficial, a study published online June 4 in BMC Medicine shows.
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