INSPIRE IN THE NEWS
Inspire unveils critical rare disease patient insights at NORD 2021
Unflagging Courage
Inspire – Building Rare Disease Patient Communities
Common but not normal: It’s time to talk about maternal mental health
Search

Inspire, the vital health community for millions of patients and caregivers, will present insights and findings from patient journeys and experiences from two rare disease studies. [by Richard Tsai]
Read More
Read More

Although cancer patients have a disproportionately higher COVID-19 mortality rate, they have nuanced vaccine attitudes. While a majority of patients expressed interest in vaccination, feelings about what vaccination can accomplish mirrored the nation's political divide. [by Richard Tsai]
Read More
Read More

Individuals with comorbid conditions have been disproportionately affected by COVID-19. Since regulatory clinical trials with COVID-19 vaccines excluded those with immunocompromising conditions, few patients with cancer and autoimmune diseases were enrolled. With limited vaccine safety data available, vulnerable populations may have conflicted vaccine attitudes. [By Richard Tsai, John Hervey, Kathleen D Hoffman, Jessica Wood, John Novack, Jennifer Johnson, Dana C. Deighton, Brian Loew, Stuart L Goldberg]
Read More
Read More

As both a caregiver and patient, I've had lots of on-the-job training. [by Dana Deighton]
Read More
Read More

On the podcast today, is Brian Loew, the founder and CEO of Inspire. Brian created Inspire 15 years ago with a goal of accelerating clinical trial recruitment, using safe, trusted online social networks, organized by medical condition for patients and their caregivers. Today Inspire has 110 health association partners and over 2 million members. I hope you’ll enjoy our conversation with Brian on “People Always, Patients Sometimes”. [By Spencer Health Solutions]
Read More
Read More
Common but not normal: It’s time to talk about maternal mental health February 23, 2021
pharmaphorum

As part of our Patients Insights series, the founder and CEO of Motherhood Understood shares her experience of postpartum depression, talks about the power of peer support, and explains what the wider healthcare community could do to play their part. [by Amanda Barrell]
Read More
Read More

The pilot project of a new HealthJourney program being developed by healthcare social network Inspire is all-virtual recruitment for a clinical research study being conducted in partnership with Pfizer, the Manton Center for Orphan Disease Research at Boston Children’s Hospital (BCH), and Citizen Genetics. The study is endeavoring to identify people in families with a history of autoimmune disease who carry “super-genes,” variants that make them resilient to lung cancer progression, according to Richard Tsai, Inspire’s senior vice president of marketing. [By Deborah Borfitz]
Read More
Read More

More than 82% of American doctors say they believe patients with significant disabilities have a worse quality of life than people who don't have disabilities, according to a new study. Those negative perceptions can have big impacts on the quality of care patients with disabilities receive. [By Lauren Kent]
Read More
Read More

Ella Balasa says she owes her life to the experimental phage therapy she was able access in no small part thanks to her scientific background. Her mission, she told pharmaphorum, is to ensure everyone has the knowledge and power they need to navigate their own healthcare journey, no matter where they are from or what they do. [by Amanda Barrell]
Read More
Read More

Special panel edition of the Amplifying Scientific Innovation Video Podcast that will focus on innovative approaches for optimizing clinical trial diversity during the JP Morgan Healthcare Conference, which is the largest and most informative healthcare investment symposium in the industry. [Moderated by Dr. Sophia Ononye-Onyia]
Read More
Read More