Poster – Access to Genomic Medicine: Perspectives from the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community eBooks Poster – Access to Genomic Medicine: Perspectives from the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community Eric TaylorFeb 2022
Poster – NORD Summit “Symptomatology around menopause in patients with Ehlers-Danlos Syndromes and hypermobility spectrum disorders” eBooks Poster – NORD Summit “Symptomatology around menopause in patients with Ehlers-Danlos Syndromes and hypermobility spectrum disorders” Eric TaylorFeb 2022
Poster – NORD Summit “Motivations for joining rare disease online support communities” eBooks Poster – NORD Summit “Motivations for joining rare disease online support communities” Eric Taylor
Strategies to recruit patients with autoimmune disease Case Studies Strategies to recruit patients with autoimmune disease Kathleen Hoffman, PhD, MSPHNov 2021
Clinical Trial Awareness Campaigns Reach Oncology Patients Eager for Clinical Trial Information Case Studies Clinical Trial Awareness Campaigns Reach Oncology Patients Eager for Clinical Trial Information InspireOct 2021
Understanding Patient Experience with Next Generation Sequencing, Treatment Decision-making and Clinical Trial Research Case Studies Understanding Patient Experience with Next Generation Sequencing, Treatment Decision-making and Clinical Trial Research Kathleen Hoffman, PhD, MSPHSep 2021
Using Analysis of Online Patient Discussions to Inform Biomarker Lung Cancer Content: An Inspire – American Lung Association Collaboration Case Studies Using Analysis of Online Patient Discussions to Inform Biomarker Lung Cancer Content: An Inspire – American Lung Association Collaboration InspireJun 2021
ASCO Abstract #1531″ People with cancer are likely to accept the COVID-19 vaccine, but politics tracks with attitudes: An Inspire and COSMO survey eBooks ASCO Abstract #1531″ People with cancer are likely to accept the COVID-19 vaccine, but politics tracks with attitudes: An Inspire and COSMO survey Kathleen Hoffman, PhD, MSPHJun 2021
Patient-Centered Pre-launch Marketing Information Case Studies Patient-Centered Pre-launch Marketing Information Kathleen Hoffman, PhD, MSPHApr 2021
