Project Description

Leveraging social media networks to understand and address
challenges due to COVID-19 within the rare disease community

About This Infographic

Inspire’s researchers performed a combined quantitative and qualitative analysis of survey data and a sociolinguistic analysis of anonymized online community discussions across more than 20 rare disease support communities. The combined survey and real-world voice analyses revealed many challenges and concerns experienced by rare disease patients and caregivers during the pandemic. 

Download “Leveraging social media networks to understand and address challenges due to COVID-19 within the rare disease community”

Download “Leveraging social media networks to understand and address challenges due to COVID-19 within the rare disease community”