Patient Insights

Video Vignettes: Through Their Own Eyes: Thyroid Cancer

Video Vignettes: Through Their Own Eyes: Thyroid Cancer By Monica St. Claire Inspire asked its members if they would share their stories by video in a project called Through Their Own Eyes. Many did, and we have shared a number of these videos.(See links below)* Today, we share a video by a [...]

Inspire Insights: What You Learn From Caregivers

Inspire Insights: What You Learn From Caregivers By Kathleen Hoffman, PhD MSPH According to the AARP’s 2015 report, “Valuing the Invaluable,” around 18% of adults in the US provide care as unpaid caregivers to family members. Over half of these caregivers are women. 1, 2 Of Inspire’s 1.3 million members, about one-third [...]

Clinical Trials: 8 Reasons Researchers Should Pay Attention to Millennials

Clinical Trials: 8 Reasons Researchers Should Pay Attention to Millennials More than 25% of the US adult population are Millennials. At 83.1 million, a bigger cohort than Baby Boomers,1 Millennials are gaining leadership in their employment, having children (30% are parents)2 and becoming extremely influential both culturally and financially. Events that have [...]

Patients MacGyvering: a resource for device and equipment manufacturers

Patients MacGyvering: a resource for device and equipment manufacturers To solve problems that patients actually have is a challenge. Companies miss opportunities when blindly offering patients what people other than patients say they need. When medical device or equipment manufacturers are looking for ideas or trying to think of ways to improve [...]

Finding Patients With Rare Cancers Quickly

Finding Patients with Rare Cancers Quickly Almost one-third of all cancer deaths are caused by rare cancers but rare cancers represent only between 23.4% and 27% of all cancer cases.1 Between 25 and 30 million Americans and around 30 million people in the European Union live with rare diseases.2 Rare cancers are [...]

In new report, Inspire examines clinical trials, genetic testing

In new report, Inspire examines clinical trials, genetic testing Editor’s note: Last week, Inspire released, “Insights from Engaged Patients: An Analysis of the Third Annual Inspire Survey”. Over the past three years, the Inspire Annual Survey has captured insights of over 30,000 respondents, representing more than seven million data points. In the [...]

Finding the Rarest of the Rare for Market Research

Finding the Rarest of the Rare for Market Research: Patient Journey Mapping Through In-depth Interviews People with rare diseases have poorly understood patient journeys.  Recently, Inspire conducted a project for a client to identify unmet needs and uncover the frustrations and challenges of a group of hard-to-find patients with an extremely rare [...]

What Do Patients Wish Their Doctors Knew?

What Do Patients Wish Their Doctors Knew? For the better part of the 21st century, researchers from academia and the pharmaceutical industry have observed, recorded, and attempted to influence the physician-patient power dynamic.  As one such study revealed in 2001, both physicians and patients have “power”; but differences in “in-office priorities” [...]

What Do Patients and Caregivers Know about Immunotherapy?

What Do Patients and Caregivers Know about Immunotherapy? Inspire’s Immunotherapy Awareness and Perceptions Survey According to a 2012 study, patient activation means “having the knowledge, skills, and confidence to manage one’s health.”  The study confirmed that better health outcomes are typically associated with greater patient knowledge and activation.1  As the field of [...]

Mobilizing Pharma: Mobile Apps and Devices

Mobilizing Pharma: Mobile Apps and Devices Today, fifty percent of Inspire’s members come to the community through their smartphones.  Another twenty percent came through tablets.1  Mobile behavior has changed so much in just a few years that we wondered how patients are using mobile apps on their devices to manage their health [...]