Patient Insights

Can social media help uncover insights about the patient journey?

Can social media help uncover insights about the patient journey? By Monica St Claire Does patients’ social media content truly reflect the real world experience of patients in general? Can it uncover insights about the patient journey? This question tends to come up when someone is new to this type of research. [...]

Using social listening to understand information needs during the patient journey: ovarian cancer

Using social listening to understand information needs during the patient journey: ovarian cancer By Kathleen Hoffman, PhD While patients see physicians as the primary and most trusted information resource, research indicates that patients with cancer also seek information elsewhere. Reasons for investigating further include 1) verification or double checking, 2) clarifying what [...]

Warring Parties: Voices of Patients in Pain Vs. “Opioid Crisis”

Warring Parties: Voices of Patients in Pain Vs. “Opioid Crisis” By Sara Ray So many of us have pain management issues. We are fighting the doctors and the state laws and the insurance companies. The "opiod [sic] crisis" is an illegal drug problem; it is not a prescription problem for chronic pain [...]

“Learn something from every patient” – Dr. James Allison, Nobel Prize Winner

"Learn something from every patient" By Kathleen D. Hoffman, PhD “I’m an exceptionally lucky guy,” the newest Nobel Laureate in Physiology or Medicine said in a recent interview.1 Dr. James P Allison, Executive Director of the Immunotherapy Platform at MD Anderson Cancer Center, was “just trying to understand the immune system” 2--and [...]

Listen to People Impacted by Rare Disease

Listen to People Impacted by Rare Disease By Kathleen D. Hoffman, PhD “The success (or failure) of the majority of rare disease drug development programmes rests on surrogate outcomes (e.g. laboratory measures, organ size) that may not reflect treatment benefits that patients value.”1 ~Morel and Canto Thomas Morel and Stefan Canto’s [...]

Brain Tumors-What patients and their caregivers need-An Inspire Insights: Engage Case Study

Brain Tumors - What patients and caregivers need - An Inspire Insights: Engage Case Study By Monica St. Claire Almost 80,000 adults will be diagnosed with brain or spinal cord tumors in the US this year.1 Seven hundred thousand are living with brain tumors in the US today.1 Although extensive media coverage [...]

Learning from patients to improve their experiences with treatments – An Inspire Insights: Discover Case Study

Learning from patients to improve their experiences with treatments - An Inspire Insights: Discover Case Study By Monica St. Claire Around 68,000 people in the US are diagnosed with bladder cancer each year.  Since 2007, in partnership with the Bladder Cancer Advocacy Network, Inspire has been providing support to patients and caregivers [...]

Qualitative analysis informs all of Inspire’s research offerings: An Inspire Engage case study

Qualitative analysis informs all of Inspire’s research offerings: An Inspire Engage case study By Monica St. Claire "Where is the understanding we have lost in knowledge?” ~T. S. Eliot 1 Inspire’s research team approaches all its work by first becoming immersed in patients’ and caregivers’ “in-the-moment” sense-making. The tool they use, [...]

Inspire’s new “Discover” solution delivers unprecedented, real-world patient insights

Inspire’s new “Discover” solution delivers unprecedented, real-world patient insights By Robert Gardner Life science companies can gain a deeper understanding of the patient experience and, in the process, empower their decision-making, through the analysis of unbiased and uncensored discussions occurring publicly on social media and particularly on Inspire. Inspire has something [...]

First Breast Cancer “Durable Regression” with Immunotherapy: Judy Perkins, Inspire member

First Breast Cancer “Durable Regression” with Immunotherapy: Judy Perkins, Inspire member By Kathleen Hoffman, PhD MSPH On June 4, 2015, Holly Kitchen, a young mom with metastatic breast cancer, published a video that received over 46 million views in one week. Its message? “Metastatic breast cancer has no cure.”1 Exactly three years [...]