Patient Communities

Exploring Treatment Options with Others Online: Crohn’s Disease and Ulcerative Colitis

Exploring Treatment Options with Others Online: Crohn’s Disease and Ulcerative Colitis By Kathleen Hoffman, PhD MSPH According to the CDC, in 2015, an estimated 1.3 percent of US adults (3 million) reported being diagnosed with irritable bowel diseases (IBD): either Crohn's disease or ulcerative colitis.1 There are 70,000 new cases diagnosed every [...]

Searching For Colorectal Cancer Treatment Answers

Searching For Colorectal Cancer Treatment Answers By Kathleen Hoffman, PhD MSPH Inspire members discuss their colorectal cancer (CRC) treatment options and choices in the Fight Colorectal Cancer Support Group on Inspire because there is a lot to discuss. While it’s the third most common cancer in the United States,1 determining a course [...]

Members Find Support on Available Treatments for Osteoporosis

Members Find Support on Available Treatments for Osteoporosis By Kathleen Hoffman, PhD MSPH While the CDC is urging the public and the medical community to delay “all elective and ambulatory provider visits,” Inspire’s partner, the National Osteoporosis Foundation (NOF), is stressing the need for osteoporosis patients to adhere to their medication schedule, [...]

The Kidney Cancer Support Community on Inspire

The Kidney Cancer Support Community on Inspire By Kathleen Hoffman, PhD MSPH Of the over 1 million cancers diagnosed each year in the US, around 3 percent are kidney cancers.1 This relatively rare cancer is twice as likely to develop in men as women. Around 73,000 new cases will occur in [...]

HPV is Not in Scarlet Letters: Cervical Cancer Patients Being Stigmatized

HPV is Not in Scarlet Letters: Cervical Cancer Patients Being Stigmatized By Kathleen Hoffman, PhD, MSPH Imagine being given a diagnosis of cervical cancer. That’s bad enough. Now, imagine that it comes with the assumption you got it by sleeping around. In 1983 and 1984, Dr. Harold zur Hausen isolated Human [...]

Getting Told You’re Making It All Up: Lupus

Getting Told You're Making It All Up By Kathleen Hoffman, PhD, MSPH Imagine going to see a doctor when you’re exhausted and enduring multiple kinds of pain, and they recommend a “psych” evaluation. When they “can’t find anything,” the medical professional you looked to for help decides you must be making [...]

Why peer-to-peer online patient communities are important to patients, caregivers and pharma

Why peer-to-peer online patient communities are important to patients, caregivers and pharma By Kathleen Hoffman, PhD What do patients and caregivers say about online patient communities? Inspire posts, podcasts, and patient advocates concur on the powerful and varied benefits, especially in research collaborations and as a trusted source of treatment and clinical [...]

1.6 Million People Accelerate Medical Progress

1.6 Million People Accelerate Medical Progress When Brian Loew founded Inspire in 2005, he never dreamed of its impact on members, on himself and on the people who worked with him. “When someone tells a story about how, by connecting with others, they learned that a certain treatment was possible. And they [...]