Video Vignettes: Through Their Own Eyes: Ovarian Cancer

Video Vignettes: Through Their Own Eyes: Ovarian Cancer Members of the Ovarian Cancer Support Community on Inspire often refer to each other as “Teal Sisters*.” It's a term of solidarity and camaraderie as they face their condition together. Their posts reflect and express warmth, concern, understanding and an eagerness to help. Below we share a video by a Teal Sister describing her experience with ovarian cancer and the Ovarian Cancer Support Community on Inspire. Getting advice The best advice comes from people who have been through the experience before.  Members of this community are open [...]

Tackling the Challenges of Rare Diseases: Introducing RareXcel

Tackling the Challenges of Rare Diseases: Introducing RareXcel Neurofibromatosis is a rare, genetic condition causing tumors to form on nerve tissue all over the body. The masses can grow both internally and externally, often appearing as lumps under the skin surface. People can experience deformities of skeletal structures as well, making this a visible disease. As a member of Inspire’s Neurofibromatosis Network support community relates, living with this condition can test self-esteem: “I'm disappointed. Life had been going pretty smoothly for me these past couple weeks….Then today happened...the depression and darkness comes out of nowhere stealing [...]