Learning from patients to improve their experiences with treatments – An Inspire Insights: Discover Case Study

Learning from patients to improve their experiences with treatments - An Inspire Insights: Discover Case Study By Monica St. Claire Around 68,000 people in the US are diagnosed with bladder cancer each year.  Since 2007, in partnership with the Bladder Cancer Advocacy Network, Inspire has been providing support to patients and caregivers living with bladder cancer. Today, the Bladder Cancer Advocacy Network Support Community on Inspire has over 32,000 members and an additional 21,320 worldwide visitors per month. As the leading social networking site in the US, Inspire is home to [...]

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2)

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2) In part 1, Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?, I shared the results of a think tank co-sponsored by the Drug Information Association (DIA) and the Cardiac Safety Research Consortium discussing the use of patient postings on social media for pharmacovigilance.  Today's post answers the question: Would Inspire’s patient-generated health discussions be useful for pharmacovigilance? Historically, pharmaceutical companies embraced a medication-focused approach to pharmacovigilance. Now, however, as R&D in the pharmaceutical industry is incorporating patient-centric methodologies in their processes, regulatory guidance is also transforming drug [...]