Tackling the Challenges of Rare Diseases: Introducing RareXcel Neurofibromatosis is a rare, genetic condition causing tumors to form on nerve tissue all over the body. The masses can grow both internally and externally, often appearing as lumps under the skin surface. People can experience deformities of skeletal structures as well, making this a visible disease. As a member of Inspire’s Neurofibromatosis Network support community relates, living with this condition can test self-esteem: “I'm disappointed. Life had been going pretty smoothly for me these past couple weeks….Then today happened...the depression and darkness comes out of nowhere stealing [...]