oncology patients Archives - Inspire Corporate

Genetic and Cellular Studies Carve New Pathways to Treating Epithelial Ovarian Cancer
Patient insights, Clinical trials, HEOR, Patient-centered healthcare

Genetic and Cellular Studies Carve New Pathways to Treating Epithelial Ovarian Cancer

Genetic and Cellular Studies Carve New Pathways to Treating Ovarian Cancer By Kathleen Hoffman, PhD, MSPH Ovarian, fallopian tube cancer and primary peritoneal cancer are often grouped under the name epithelial ovarian cancer. When classified as subcategories of ovarian cancer, primary peritoneal cancers and fallopian tube cancers are considered rare. The incidence rate of primary peritoneal cancer is estimated to be 6.78 per million.1 Fallopian tube cancers have been thought to be “very rare,” accounting for 1-2% of all gynecologic cancers.2 Because these cancers are usually advanced by the time they are diagnosed, it has been difficult [...]

Jun 2021By Kathleen Hoffman, PhD, MSPH|0 Comments

Cancer, COVID, and Vaccinations: The Patient Perspective at ASCO 2021
Patient insights, Clinical trials, HEOR, Patient communities, Patient stories, Patient-centered healthcare

Cancer, COVID, and Vaccinations: The Patient Perspective at ASCO 2021

Cancer, COVID, and Vaccinations: The Patient Perspective at ASCO 2021 By Kathleen Hoffman, PhD, MSPH Inspire is presenting the results of two separate surveys during the American Society of Clinical Oncology® (ASCO) virtual conference being held June 4-8. Chosen from the more than 5,400 abstracts submitted for the 2021 ASCO Annual Meeting, the studies focus on COVID-19 vaccine hesitancy and reactions to the vaccine among patients with cancer. Inspire’s cancer community Inspire has almost one million members who are patients with cancer and their caregivers. In the last 15 years, over three million posts (3,555,105) have been [...]

Jun 2021By Kathleen Hoffman, PhD, MSPH|0 Comments

In Search of Answers: Head and Neck Squamous Cell Carcinoma (HNSCC)
Patient communities, Clinical trials, Patient insights, Patient stories, Patient-centered healthcare

In Search of Answers: Head and Neck Squamous Cell Carcinoma (HNSCC)

In Search of Answers: Head and Neck Squamous Cell Carcinoma (HNSCC) By Kathleen Hoffman, PhD, MSPH The basic dry facts about Head and Neck Squamous Cell Cancer (HNSCC) are that it is a cancer of the mucosal lining of the oral cavity and larynx; typical treatments include surgical intervention, chemotherapy, radiation, and, more recently, immunotherapy, followed by various kinds of rehabilitation and reconstruction. However, let’s make it real. A member of Inspire’s Head and Neck Cancer Alliance community describing their Survivor Story said: I am [an] oral cancer (Tongue cancer) survivor (my age is ___ years). In [...]

May 2021By Kathleen Hoffman, PhD, MSPH|0 Comments

What’s Pharma’s Key to Success in 2021?
Patient insights, Clinical trials, HEOR, Marketing, Patient communities

What’s Pharma’s Key to Success in 2021?

What's Pharma's Key to Success in 2021? By Kathleen Hoffman, PhD, MSPH What commercial and clinical trends can we expect to shape pharma and biotech as the pandemic continues into 2021? What can your company do to make 2021 a better year? In August, Deloitte surveyed 60 marketing leaders of biopharma companies and published the findings. Fully 80% of respondents expected changes in “consumer attitudes, behaviors, and spending” to have the biggest impact on their company over the coming year.1,2 This supports Deloitte’s 2019 report anticipating a “consumer-centered future of health,” including the consumer’s increased willingness to [...]

Jan 2021By Kathleen Hoffman, PhD, MSPH|0 Comments

Top 5 Ways Online Patient Communities Can Reduce the Cost of Clinical Trials
Clinical trials

Top 5 Ways Online Patient Communities Can Reduce the Cost of Clinical Trials

Top 5 Ways Online Patient Communities Can Reduce the Cost of Clinical Trials By Jeff Terkowitz Trying to rein in clinical trial costs? You’re not alone. A JAMA research study of 138 trials for novel therapeutics found that clinical trial costs ranged from less than $5 million to $346.8 million, with a cluster of trials coming in between $12-33 million -- and that was for trials in 2015-2016.1 Let’s agree on two things: It hasn’t gotten any cheaper, and finding qualified participants is still an issue. Here are five ways online patient communities can reduce the costs [...]

Dec 2020By Jeff Terkowitz|1 Comment

How Do You Elevate Your Patient Insights Strategy?
Marketing, Patient insights

How Do You Elevate Your Patient Insights Strategy?

How Do You Elevate Your Patient Insights Strategy? By Kathleen Hoffman, PhD MSPH You know what you want to say about your product, but are you still looking for the right way to say it? Successful DTC advertising relies on finding language that resonates with target patients. A recent study demonstrated just how profoundly a choice of words affects patient treatment decisions. A survey cited in the JAMA in March showed that 400 ductal carcinoma in situ (DCIS) patients chose different theoretical treatments based on descriptions alone. When DCIS is presented as “abnormal cells,” 69% of the [...]

Nov 2020By Kathleen Hoffman, PhD, MSPH|0 Comments

Recruiting Rare and Oncological Patients? Top Pharma Turns to Inspire
Clinical trials

Recruiting Rare and Oncological Patients? Top Pharma Turns to Inspire

Recruiting Rare and Oncological Patients? Top Pharma Turns to Inspire By Jeff Terkowitz Did you know that 80 percent of Inspire’s members agreed to receive information from Inspire about clinical trials? That’s about 1.6 million members with conditions in oncology, rare diseases, autoimmune disorders and chronic conditions who want to know if and when trials affecting their condition might be recruiting. Pfizer needed to find rare patients with genetic resilience to lung cancer. On Sept 23, the Breakthrough Staff at Pfizer wrote, Normally, discovering a small cohort or one or two families who meet such criteria might [...]

Nov 2020By Jeff Terkowitz|0 Comments

Video Vignettes: Through Their Own Eyes: Ovarian Cancer
Patient stories

Video Vignettes: Through Their Own Eyes: Ovarian Cancer

Video Vignettes: Through Their Own Eyes: Ovarian Cancer Members of the Ovarian Cancer Support Community on Inspire often refer to each other as “Teal Sisters*.” It's a term of solidarity and camaraderie as they face their condition together. Their posts reflect and express warmth, concern, understanding and an eagerness to help. Below we share a video by a Teal Sister describing her experience with ovarian cancer and the Ovarian Cancer Support Community on Inspire. Getting advice The best advice comes from people who have been through the experience before. Members of this community are open [...]

Mar 2018By Kathleen Hoffman, PhD|0 Comments

A Researcher’s Goldmine: Quality, Motivated Participants, Fast
Patient engagement

A Researcher’s Goldmine: Quality, Motivated Participants, Fast

A Researcher's Goldmine: Quality, Motivated Participants, Fast Seventeen years. That’s the average lag time between early clinical research efforts and real, positive, public health, pharmaceutical, or clinical interventions.1 Contributing to this delay is recruitment: the daunting task of finding and retaining willing participants for clinical trials and subsequent market research. In the almost 11,000 clinical trials that were enrolling 2.8 million participants altogether in 2009, 27% failed to enroll anyone.2 In fact, less than five percent of adults with cancer participate in clinical trials.3 It is a time consuming task to identify participants based [...]

Mar 2017By Jeff Terkowitz|0 Comments