Inspire’s MS Community Overcomes Patient Isolation with Peer-to-Peer Support and Experience

Inspire’s MS Community Overcomes Patient Isolation with Peer-to-Peer Support and Experience By Kathleen Hoffman, PhD, MSPH Over 15,000 members of Inspire have interest in, searched for, or have posted about multiple sclerosis (MS). Members have written over 4000 posts and more than 2000 searches have been conducted on MS. Pharmaceutical marketers wonder if patients discuss medications with each other online. The answer is a definitive yes. Patients also discuss what they learned online about treatments with their health care provider. It is not unusual for members to reach out after just being diagnosed. “I was just [...]

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2)

Research Confirms: Valuable Patient-Centered Data on Inspire (Part 2) In part 1, Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance?, I shared the results of a think tank co-sponsored by the Drug Information Association (DIA) and the Cardiac Safety Research Consortium discussing the use of patient postings on social media for pharmacovigilance.  Today's post answers the question: Would Inspire’s patient-generated health discussions be useful for pharmacovigilance? Historically, pharmaceutical companies embraced a medication-focused approach to pharmacovigilance. Now, however, as R&D in the pharmaceutical industry is incorporating patient-centric methodologies in their processes, regulatory guidance is also transforming drug [...]