Implementing patient centricity?

Implementing patient centricity? By Monica St. Claire Over 1,000 employees from bio-pharmaceutical, medical device and associated supplier companies responded to the Aurora Project’s recent Patient-Centric Benchmarks Survey. Of those respondents, 91% said patient centricity is important, a 6% increase from 2016. But only 30% believe the industry can make it a reality. Knowing how to be patient centric seems to be the missing ingredient. Only 22% of respondents agreed with this statement, “We know exactly what and how to teach [patient centricity] to our people.”1 While many articles call patient centricity a “mantra” and “cliché,”2 Inspire [...]

Finding the Rarest of the Rare for Market Research

Finding the Rarest of the Rare for Market Research: Patient Journey Mapping Through In-depth Interviews People with rare diseases have poorly understood patient journeys.  Recently, Inspire conducted a project for a client to identify unmet needs and uncover the frustrations and challenges of a group of hard-to-find patients with an extremely rare condition, Primary Periodic Paralysis or PPP which affects approximately 4,000 to 5,000 diagnosed individuals in the US. PPP is an exceptionally rare genetic neuromuscular disorder which involves the ion channels in muscular membranes. Children of someone who carries the condition have a 50-50 chance of [...]

Health Communications from a Linguist’s Perspective

Health Communications from a Linguist’s Perspective At the intersection of technology and innovation is improved healthcare communication.  Stanford Medicine X Conference, September 14-17, is an opportunity “to exchange bold new ideas about the future of medicine and the role technology will play in improving health.”  I'm proud to be participating in a panel discussion at Med X on Saturday, September 16.  My presentation explores the impact of social networks on interactions  between patients and their physicians as well as among patients and caregivers impacted by the same condition. Current issues impacting medical decision-making and health communication Among [...]

How Does Pharma Learn To Speak “Patient”?

How Does Pharma Learn To Speak “Patient”? After passage of the 21st Century Cures Act in December 2016, speaking “patient,” is more essential than ever. What does speaking “patient” mean? Speaking “patient” means truly understanding and interpreting what patients are saying. That’s because the Act promotes “incorporating the patient perspective” more intentionally and systematically throughout the drug and device development process. As Former FDA Commissioner Robert Califf explains, “This new law rightly recognizes that patients should play an essential role in the development of drugs and devices to diagnose and treat their disease, since patients [...]