Social Listening to Understand the Unmet Needs of Patients

Social Listening to Understand the Unmet Needs of Patients By Marina Shayevich and Sara Ray Across healthcare, patients lament the imperfection of pharmaceutical treatment. Although grateful to have life saving and life improving medications, patients are often met with frustration at the limitations of their medications. Nowhere is that more evident than in rare diseases, where the rarity of the illness may lead to a scarcity of available, approved pharmaceutical treatment options. Many patients are left to turn to off-label medication use in the effort to get the best solution possible. Even then, these treatments do not [...]

How You Can Achieve Patient Focused Drug Development

How You Can Achieve Patient Focused Drug Development By Monica St Claire The application of a sociolinguistic lens can glean hidden meanings within seemingly ordinary communications. On the Society of Linguists website, Walt Wolfram, director of the North Carolina Language and Life Project at North Carolina State University said, “We use language to send vital social messages about who we are, where we come from, and who we associate with.” Wolfram says that we can learn much about a person just by their choice of a single word.1 In the area of health communication, linguists identify [...]

Can social media help uncover insights about the patient journey?

Can social media help uncover insights about the patient journey? By Monica St Claire Does patients’ social media content truly reflect the real world experience of patients in general? Can it uncover insights about the patient journey? This question tends to come up when someone is new to this type of research. It’s a good question. Social media’s pervasive presence has been documented by Pew Research, among others, finding that Facebook is used by 74% of Americans on a daily basis, over half saying it is used more than once-a-day, and that 73% of Americans use multiple [...]

Understanding information needs during the patient journey: ovarian cancer

Understanding information needs during the patient journey: ovarian cancer By Kathleen Hoffman, PhD While patients see physicians as the primary and most trusted information resource, research indicates that patients with cancer also seek information elsewhere. Reasons for investigating further include 1) verification or double checking, 2) clarifying what they have learned and even obtaining translations of what they have heard from other patients who have “been there,” 3) being directed by one source to query another source1 and for those who reach out to other patients 4) trust and desire for real world experience in managing expectations. [...]

Implementing patient centricity?

Implementing patient centricity? By Monica St. Claire Over 1,000 employees from bio-pharmaceutical, medical device and associated supplier companies responded to the Aurora Project’s recent Patient-Centric Benchmarks Survey. Of those respondents, 91% said patient centricity is important, a 6% increase from 2016. But only 30% believe the industry can make it a reality. Knowing how to be patient centric seems to be the missing ingredient. Only 22% of respondents agreed with this statement, “We know exactly what and how to teach [patient centricity] to our people.”1 While many articles call patient centricity a “mantra” and “cliché,”2 Inspire [...]

How R&D Teams Can Use Patient-Centricity for Clinical Trial Optimization

How R&D Teams Can Use Patient Centricity for Clinical Trial Optimization By Monica St. Claire In 2014, Tufts Center for the Study of Drug Development performed a comprehensive assessment of the use of social media and digital technology in clinical research. This forward-thinking study revealed that pharmaceutical, biotechnology companies and contract research organizations (CROs) had not implemented strategies to effectively utilize and capitalize on the patient and caregiver content available.1 Today, Inspire’s products and services address these clinical trial optimization essentials. Specifically, our tools provide pharmaceutical and biotechnology companies’ research and development (R&D) teams as well [...]

Learning from patients to improve their experiences with treatments – An Inspire Insights: Discover Case Study

Learning from patients to improve their experiences with treatments - An Inspire Insights: Discover Case Study By Monica St. Claire Around 68,000 people in the US are diagnosed with bladder cancer each year.  Since 2007, in partnership with the Bladder Cancer Advocacy Network, Inspire has been providing support to patients and caregivers living with bladder cancer. Today, the Bladder Cancer Advocacy Network Support Community on Inspire has over 32,000 members and an additional 21,320 worldwide visitors per month. As the leading social networking site in the US, Inspire is home to [...]

Inspire’s new “Discover” solution delivers unprecedented, real-world patient insights

Inspire’s new “Discover” solution delivers unprecedented, real-world patient insights By Robert Gardner Life science companies can gain a deeper understanding of the patient experience and, in the process, empower their decision-making, through the analysis of unbiased and uncensored discussions occurring publicly on social media and particularly on Inspire. Inspire has something that no other healthcare social network has - Inspire’s proprietary, longitudinal data. Our new solution, Inspire Insights: Discover, is a social listening suite of products combining the real world patient-engagement of Inspire’s patient support communities with other open-source, publicly available, online social media content from [...]