Finding the Rarest of the Rare for Market Research

Finding the Rarest of the Rare for Market Research: Patient Journey Mapping Through In-depth Interviews People with rare diseases have poorly understood patient journeys.  Recently, Inspire conducted a project for a client to identify unmet needs and uncover the frustrations and challenges of a group of hard-to-find patients with an extremely rare condition, Primary Periodic Paralysis or PPP which affects approximately 4,000 to 5,000 diagnosed individuals in the US. PPP is an exceptionally rare genetic neuromuscular disorder which involves the ion channels in muscular membranes. Children of someone who carries the condition have a 50-50 chance of [...]