CMT Archives - Inspire Corporate

Collaborating with Rare Disease Patient Advocacy Organizations

Collaborating with Rare Disease Patient Advocacy Organizations By Judy Chandler MPH, CHES The first Rare Disease Day took place on February 29, 2008, chosen because February 29 is a “rare date.” Since then, it has continued to occur on the last day of February. Inspire will participate in this year’s worldwide awareness effort to help inform the general public and policy makers about the impact of rare diseases on patients’ lives at the annual Rare Disease Day at National Institutes of Health with a poster and exhibit booth on February 28. Defined as affecting less than 200,000 [...]

The Case for Online Consumer Recruiting

The Case for Online Consumer Recruiting Over the past few years, recruiting for consumer healthcare market research has undergone a drastic change. In the past, pharma clients would take their business questions to their research vendors, who could easily leverage panel companies to fill the desired project samples and ultimately deliver successful insights back to their clients. As the industry has shifted its focus to oncologic conditions, rare diseases, orphan drugs and otherwise underserved populations, vendors are struggling to access these small, unique patient populations, resulting in partial, or even total, failures in fielding. I recently addressed [...]