Project Description

Uncovering Patient and Caregiver Support Needs

Insights from Online Community Discussions Across 30* Rare Diseases

About This Rare Disease Day Poster

In an effort to gain deeper insights into patient and caregiver sentiments and perceptions, we drew upon 2,556 rare disease posts written by Inspire members of rare disease communities between January 2019 and January 2020.

Download “Uncovering Patient and Caregiver Support Needs”

Subscribe to Inspire's Patient Pulse blog(Required)

Voices of rare disease patients