Project Description

Insights from Engaged Patients: 

An Analysis of the Third Annual Inspire Survey

Highlights from this report

  • Three of 10 respondents say they have talked to their doctors about enrolling in clinical trials, and about 14% actually participated in a clinical trial.
  • 57% of patients would be willing to share both DNA and health records in a hypothetical clinical research project.
  • An additional 16% would be willing to share either their DNA or their health records.
  • 54% of patients say they use smartphone apps/tools to manage their health.
  • Almost two-thirds of patients have gone without one of their prescription drugs. Most said they had stopped taking their medication due to side effects, but cost and insurance coverage remain pervasive issues.

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