Patient engagement archives - Page 2 of 5

Email in Healthcare: Reaching the Most Engaged Patients with your DTC Campaigns
Patient engagement

Email in Healthcare: Reaching the Most Engaged Patients with your DTC Campaigns

Email in Healthcare: Reaching the Most Engaged Patients with your DTC Campaigns By Odin Soevik Patients are becoming increasingly involved in managing their own health. While they might not be able to write their own prescriptions, patients are actively seeking out information about new products and treatments, and using it to ask the right questions of their doctors. Getting treatment information into the hands of these patients comes down to carefully managed, targeted-communication. Providers that choose the right balance of tools are in the best position to help patients improve their outcomes. When it comes to choosing [...]

Feb 2019By Odin Soevik|0 Comments

Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development
Patient engagement

Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development

Using Quantitative and Qualitative Research to Enhance Patient Focused Drug Development By Hannah Eccard FDA’s focus of incorporating the patient voice into the drug development process requires the life science industry to engage in new research strategies. Based on what we're seeing so far from the FDA, it appears that the agency is closely considering the value of mixed methods: qualitative research along with quantitative research. Dr. Theresa Mullin, Associate Director for Strategic Initiatives at the Center for Drug Evaluation and Research (CDER) at FDA, said at the first guidance meeting for Patient Focused Drug Development (PFDD) [...]

Jan 2019By Hannah Eccard|0 Comments

What is a Virtual Advisory Board product?
Patient engagement

What is a Virtual Advisory Board product?

What is a Virtual Advisory Board product? By Monica St. Claire Almost 60 percent of all clinical trial protocols have at least one amendment. Amendments lower the numbers of recruited patients as well as increase the cost of clinical trials according to Tufts Center for the Study of Drug Development Impact Study from 2016.1 Obtaining input from patients and caregivers early in the protocol development process could prevent many amendments. This is just one reason to consider an Inspire virtual advisory board. Virtual advisory boards provide clients with a long-term opportunity to engage with key patients [...]

Aug 2018By Monica St Claire|0 Comments

Targeting Your Audience: Where and How to Engage Millennials with Health Messages
Patient engagement

Targeting Your Audience: Where and How to Engage Millennials with Health Messages

Targeting Your Audience: Where and How to Engage Millennials with Health Messages By Sara Ray In Clinical Trials: 8 Reasons Researchers Should Pay Attention to Millennials, I identified unique cohort characteristics and experiences that have impacted millennials.1 Constant connectivity and technological sophistication inform and shape their lives and outlook. We explored where and how they spent their time online as healthcare consumers. To learn more, the research team at Inspire surveyed over 300 members between the ages of 18 and 36. (see note below) We focused on where and why they are active online, and their [...]

Aug 2018By Sara Ray|0 Comments

Real World Evidence Substantiates the Audience Quality of Inspire’s Membership
Patient engagement

Real World Evidence Substantiates the Audience Quality of Inspire’s Membership

Real World Evidence Substantiates the Audience Quality of Inspire’s Membership By Odin Soevik With spending on direct-to-consumer digital advertising at $343 million in 2017, pharmaceutical companies want to know that their money is spent to reach the right patients and caregivers at the right time.1 Reaching a quality audience has been the challenge for online advertising. But now, companies have access to Real World Evidence (RWE), from electronic health records to patient claim records and other “big data” extraction. RWE is being coupled with marketing strategies to determine audience quality.2 Recently, a digital agency for a major [...]

Jul 2018By Odin Soevik|0 Comments

Engaging with communities on Inspire: Inspire’s Ostomy Support Community
Patient engagement

Engaging with communities on Inspire: Inspire’s Ostomy Support Community

Engaging with communities on Inspire: Inspire’s Ostomy Support Community Engaging with communities on Inspire: Inspire’s Ostomy Support Community Ostomy surgery is a procedure performed on people who have a diseased or malfunctioning colon, small intestines or bladder. After the procedure, bodily wastes - either urine, feces or indigestible food - leave the body through a created opening in the abdomen, called a stoma. Waste is collected in medical appliances. Bearing this significant change in basic bodily functions, coping with and accepting this transformation requires support. Providing this support is the Ostomy Discussion Community on Inspire, an example [...]

May 2018By Adam Kleger|0 Comments

Everything Your Organization Needs in One Place: Inspire Products
Patient engagement

Everything Your Organization Needs in One Place: Inspire Products

Everything Your Organization Needs in One Place: Inspire Products Inspire has four product lines available to address the needs of the life science industry and other healthcare organizations, like hospitals and clinics. Thousands of patients within Inspire’s communities are interested in and actively looking for opportunities to participate in clinical trials. They are members with rare diseases as well as more common conditions. They are asking each other questions like: “How do I know if a clinical trial is right for me? How do I know if I am right for a [...]

Apr 2018By Jeff Terkowitz|0 Comments

Launching communities with Inspire: The Pancreatic Neuroendocrine Tumor (PNET) Support Community
Patient engagement

Launching communities with Inspire: The Pancreatic Neuroendocrine Tumor (PNET) Support Community

Launching communities with Inspire: The Pancreatic Neuroendocrine Tumor (PNET) Support Community For patients and caregivers facing rare cancers, finding others going through the same experience is challenging. Yet, communicating with others who have “been there” is essential support. This can be especially true when statistics and online information about rare disease - out of context -can be frightening. In 2011 Inspire’s moderation team found over 2900 mentions of carcinoid and over 200 mentions of neuroendocrine tumor in posts across all the cancer communities of Inspire. Patients, caregivers, and others affected by pancreatic [...]

Apr 2018By Richard Tsai|0 Comments

Inspire posts forward medical research in adverse drug reactions, new study shows
Patient engagement

Inspire posts forward medical research in adverse drug reactions, new study shows

Inspire posts forward medical research in adverse drug reactions, new study shows Over 2 million injuries, hospitalizations and deaths in the US each year are associated with post-approval adverse drug reactions (ADRs).1 The usual method of gathering ADR data is through provider reporting. Research suggests that health care providers tend to under-report ADRs, sometimes because patients just don’t discuss all of their treatment experiences with them.2 Supplementing spontaneous provider-reliant reporting could be extremely beneficial to patient safety. In Can Patient-Generated Health Communication on the Internet Enhance Pharmacovigilance? (Part 1)3 and Research Confirms: Valuable Patient-Centered Data on Inspire [...]

Mar 2018By Jeff Terkowitz|0 Comments

From Research To Action for Patients
Patient engagement

From Research To Action for Patients

From Research To Action for Patients It is exciting to see the results of research providing strong, positive benefits to patients. That was the take-away from a joint presentation made by Inspire and Strongbridge BioPharma at the Pharmaceutical Market Research Conference (PMRC) this month. Last fall, Strongbridge BioPharma engaged Inspire to find the “rarest of the rare”- people who have the exceptionally rare condition, primary periodic paralysis or PPP. There are between 4,000 and 5,000 diagnosed individuals in the US. Finding the Rarest of the Rare for Market Research: Patient Journey Mapping Through In-depth Interviews describes how [...]

Feb 2018By Richard Tsai|0 Comments