Heart to Heart Talks: Inspire Members and Heart Disease

Heart to Heart Talks: Inspire Members and Heart Disease By Kathleen Hoffman, PhD, MSPH Heart disease is the leading cause of death in the US among men and women, and for most racial and ethnic groups. Responsible for one in four deaths every year, more people die of heart disease than they do of cancer.1 “Heart disease” is a general category, but the most common kind of heart disease in the US, coronary artery disease (CAD), accounts for over half of the fatalities. CAD killed 365,914 people in 2017. Twenty percent of those who die of CAD [...]

The Race to Rescue Livers: Finding Treatments for NASH

The Race to Rescue Livers: Finding Treatments for NASH By Kathleen Hoffman, PhD, MSPH There is a race to develop drugs to treat non-alcoholic steatohepatitis, commonly called NASH. NASH, an aggressive form of liver disease causing inflammation and scarring, already affects 3-12% of the entire US population.1,2 What’s the incentive? There’s currently no approved treatment, and it can be fatal.3 The current standard of care is lifestyle changes. NASH is a more serious form of NAFLD (non-alcoholic fatty liver disease) and can result in cirrhosis.4 Related to obesity and diabetes, but not to alcohol consumption, NAFLD already [...]

A Surprise Diagnosis: Chronic Kidney Disease

A Surprise Diagnosis: Chronic Kidney Disease By Kathleen Hoffman, PhD, MSPH March is National Kidney Month, when communities across the country work to raise awareness about kidney disease. Not too worried? You might want to check: The CDC estimates that 15% of adults are estimated to have Chronic Kidney Disease (CKD). That’s 37 million people in the US alone. Even worse: Most (9 in 10) adults with CKD  do not know they have it.  You can be unaware even if you’re in serious danger of kidney failure. One in 2 people with very low kidney function who [...]

Trying To Find More Answers About Tuberous Sclerosis Complex

Trying To Find More Answers About Tuberous Sclerosis Complex By Kathleen Hoffman, PhD, MSPH Tuberous Sclerosis Complex (TSC) is a “rare” genetic disease: According to the Tuberous Sclerosis Alliance, Inspire’s community partner, “At least two children born each day will have tuberous sclerosis complex.”1 Classifying a disease that affects a million people worldwide as “rare” doesn’t comfort patients with TSC. Created by mutations in one or two genes, TSC1 and TSC2, its manifestations vary widely depending on the nature of the mutation, which is why it is called “tuberous sclerosis complex.” It’s a complex genetic disorder. It [...]

Customer Loyalty and Service Insights for the Pharmaceutical Industry

Customer Loyalty and Service Insights for the Pharmaceutical Industry By Dana Deighton “Only nine percent of U.S. consumers believe pharmaceutical and biotechnology companies put patients over profits.” This sentiment, found in the 2016 Harris Poll of Reputation Equity and Risk Across the Health Care Sector, has stayed fairly consistent in Harris polls until recently.1 In this year’s April and May series of surveys around the COVID-19 pandemic, Harris asked the question, “How has your view of [the Pharmaceutical Industry] changed since the start of the coronavirus pandemic?” In both the polls, 40% of respondents had a more [...]

Implementing patient centricity?

Implementing patient centricity? By Monica St. Claire Over 1,000 employees from bio-pharmaceutical, medical device and associated supplier companies responded to the Aurora Project’s recent Patient-Centric Benchmarks Survey. Of those respondents, 91% said patient centricity is important, a 6% increase from 2016. But only 30% believe the industry can make it a reality. Knowing how to be patient centric seems to be the missing ingredient. Only 22% of respondents agreed with this statement, “We know exactly what and how to teach [patient centricity] to our people.”1 While many articles call patient centricity a “mantra” and “cliché,”2 Inspire [...]

Can the Life Science Industry Be Part of Shared Medical Decision-Making?

Can the Life Science Industry Be Part of Shared Medical Decision-Making? By Richard Tsai In the past, if there was something wrong, most patients went to the doctor and did what their doctors told them to do. Now, the plethora of available online health information has transformed the dynamic between patients and their doctors.  According to Pew Research Center’s 2013 data, 59% of Americans search for health information online. In 2015 Google found that one in twenty online searches were health-related.1 Armed with information about diagnoses and treatments, patients can change the medical decision-making process. Inspire’s 3rd [...]

Patient Engagement Leadership Series Part 1: Clinical Trial Participants Are Medical Heroes

Patient Engagement Leadership Series Part 1:  Clinical Trial Participants Are Medical Heroes “I think a hero is any person really intent on making this a better place for all people.”  ~ Maya Angelou In Embracing the Patient Centric Culture, I discussed the paradigm shift facing healthcare. “Instead of doing things for or to the patient, now the goal must be empowering and working in partnership with the patient...to elevate the perspectives of patients and caregivers, incorporating their needs and priorities…. Building active listening to, or obtaining a continuous stream of insights from patients and caregivers into [...]

Health Communications from a Linguist’s Perspective

Health Communications from a Linguist’s Perspective At the intersection of technology and innovation is improved healthcare communication.  Stanford Medicine X Conference, September 14-17, is an opportunity “to exchange bold new ideas about the future of medicine and the role technology will play in improving health.”  I'm proud to be participating in a panel discussion at Med X on Saturday, September 16.  My presentation explores the impact of social networks on interactions  between patients and their physicians as well as among patients and caregivers impacted by the same condition. Current issues impacting medical decision-making and health communication Among [...]

Humanizing The Brand Experience: Five Ways to Optimize Your Patient-Centric Strategy with Social Media

Humanizing The Brand Experience: Five Ways to Optimize Your Patient-Centric Strategy with Social Media Today, over 65% of American adults are using social media sites, and adoption from seniors (65 and older) has grown from 0% in 2006 to 35% in 2015. This digital transcendence has had profound implications for healthcare and medicine, which is now the leading factor that is enabling the entire healthcare ecosystem to pivot around the patient-centric model. The one-size-fits-all wonder drug and the physician-voice-driven model, as we know it, is rapidly undergoing a paradigm shift towards advanced biologics (i.e., cell-based immunotherapies) and [...]