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So far Inspire has created 13 blog entries.

Research reveals interstitial cystitis triggers and frustrations

Research reveals interstitial cystitis triggers and frustrations The Interstitial Cystitis Association (ICA) estimates that as many as 8 million women and 4 million men in America live with interstitial cystitis, also known as bladder pain syndrome or IC/BPS. Various treatment pathways exist, but they are not guaranteed to work for all individuals that are living with the condition. From the community: “I get lower stomach pain when my bladder is filling up. Urgency as well. I can’t hold on otherwise it’s painful. Very bad stinging and burning when I urinate. I have these symptoms almost every day, [...]

Taking patient market research to the next level with PatientJourney+

Taking patient market research to the next level with PatientJourney+ The Inspire community is the largest repository of fully consented patient-created health content on the internet. By participating, Inspire members support one another through their health journeys, and often help to accelerate medical breakthroughs. Posts created within Inspire’s disease-specific communities highlight patient and caregiver needs, concerns, and thought processes. They offer a window into the authentic patient and caregiver perspective for pharmaceutical companies and clinical research organizations, and provide critical guidance for clinical, commercial, and public health initiatives. Many members choose to participate in client sponsored research [...]

Clinical trial recruitment challenges

Clinical trial recruitment challenges Recruiting participants for clinical trials is fraught with challenges. Factors such as study complexity, logistical concerns (e.g., patient lives two hours from the study site), and patients’ lack of awareness of clinical trials can contribute to significant study delays or cancellations. Inspire communities can be a viable source of clinical trial participants who are well-educated on their conditions. Sponsors seeking participants for clinical trials, interviews and focus groups have benefited from our community members’ participation and perspectives, and many have shared their experiences with their Inspire community. [...]

Genomic Testing for HR+/HER2- Breast Cancer

Genomic Testing for HR+/HER2- Breast Cancer Breast cancer (BC) is the most common cancer diagnosed globally, with 330,000 new cases predicted in the United States during 2022. But those numbers don’t account for patients who were previously diagnosed and experience disease recurrence. Experts are particularly concerned with disease recurrence in patients with hormone receptor-positive/HER2-negative (HR+/HER2-) BC. This subtype of BC accounts for approximately 70% of all new cases. The initial outlook for HR+/HER2- is promising — more than 90% of people get diagnosed in early, non-metastatic stages (stages I-III). But even though experts continue to advance [...]

Jul 2022By |Clinical Trial Awareness Recruitment, Clinical Trials|Comments Off on Genomic Testing for HR+/HER2- Breast Cancer

Optimizing the Patient Perspective

Optimizing the Patient Perspective As medicine has evolved, so has the role of patients in their medical care. Today’s patients are more active and involved. They have questions and seek answers — from family and friends, medical professionals, online communities, social media, and yes, Dr. Google. Identifying and responding to patients’ questions and concerns about their diagnoses and care plans can go a long way toward instilling confidence in their treatments. Increasingly we find that when it comes to the development and introduction of new drugs and medical interventions, it’s important to factor in the patient [...]

Jul 2022By |Patient Communities, Patient Insights|Comments Off on Optimizing the Patient Perspective

New Treatments for Migraines Sufferers

New Treatments for Migraines Sufferers An estimated 39 million Americans experience migraines — that’s more than 1 in 10 people. People of all ages, including children, can develop this disabling neurological condition. They experience recurring intense throbbing or pulsing head pain, sometimes accompanied by nausea, an aura, and light and sound sensitivities. From the community: “I have had migraines all my life. I have learned to live with and deal with many of them but every so often there are the ones that don't respond to anything or are significantly disabling. I often have them for [...]

Jun 2022By |Patient Communities, Patient Insights|Comments Off on New Treatments for Migraines Sufferers

March 2022

Volume 15 | March 2022 ENDOMETRIOSIS AWARENESS MONTH Celebrities with endometriosis sharing stories and spreading awareness In recognition of Women's History Month and Endometriosis Awareness Month, we are highlighting well-known women who have the condition. One in ten women suffers from endometriosis. The condition occurs when tissue, similar to the lining of the uterus, grows outside the uterus in a woman's abdominal cavity. It causes heavy bleeding, abdominal pain, and can cause infertility. Several prominent women have spoken out about their experiences. Actress/YouTube Star Tia Mowry-Hardrict, 43, thought she was alone in her suffering because she didn't know anyone else [...]

Mar 2022By |Monthly Dose, Newsletter|Comments Off on March 2022

Feburary 2022

Volume 14 | February 2022 HEART MONTH Join WomenHeart in Spreading Awareness about the Risk of Heart Disease While heart disease is the leading cause of death in women, less than half of women in the U.S. are aware of that risk. Fortunately, 80% of heart disease is preventable.February is American Heart Month. Act now to take control of your heart health. In addition to eating healthy and exercising regularly, women should see a health care provider to learn their numbers: their blood pressure, cholesterol and blood sugar. If any of those are out of the healthy range, there are [...]

Feb 2022By |Monthly Dose, Newsletter|Comments Off on Feburary 2022

January 2022

Volume 13 | January 2022 ACTIVITY SUMMARY The New Activity Summary Email The new Activity Summary email now highlights the most active posts in the communities you belong to. With a Recommended Post feature, Active Posts section, and New Members section you can see highlights in one concise email. We updated this email to be more reflective of our site changes (more coming soon). It adds a "Read more" option to direct you to active posts in your communities for your comments and reactions. This new format has removed repeats of discussions, journals, and replies and if you’d like to [...]

Jan 2022By |Monthly Dose, Newsletter|Comments Off on January 2022

Redefining Life as a Patient and Caregiver : Experts by Experience 2018

Redefining Life as a Patient and Caregiver : Experts by Experience 2018 Parenting and caring for a child with a medical condition challenges Erin Moriarty Wade. She writes, “I know that the patient experience begins long before you meet the doctor. I know that sometimes even parking your car can become a big part of that experience–especially when you have to park at a distance with a cranky toddler in a stroller, and a child hobbling in pain. I understand the fear that patients may feel, and I appreciate the role of the oft-forgotten caregiver.” Early [...]