News & Publications

Here's a listing of media coverage of Inspire and its partners, and Inspire press releases. For media inquiries, contact John Novack, Director of Communications, at john@inspire.com or (800) 945-0381.

Invisible Illness Insights: "A Little Understanding Could Change So Many Lives"
HealthWorks Collective
November 18, 2014

Inspiring Older Patients to Seek Online Communities
RealWorldHealthCare.org
October 2, 2014

Real World Takeaway Strategies for Successful Partnerships
Presentation by Inspire CEO Brian Loew and Claire Gill, National Osteoporosis Foundation, to the Patient Centricity and Advocacy Summit conference
September 30, 2014

How Genentech taps into online patient communities to improve clinical trials
MobiHealthNews
September 23, 2014

Transparency Life Sciences To Conduct Sarcoidosis Trial For Auven Therapeutics' Kiacta™ Using Crowdsourcing And Telemonitoring
News release
September 19, 2014

New Technologies Close the Recruitment Gap
Applied Clinical Trials
September 15, 2014

Don’t Fail to Communicate – Identify Patient Perceptions of Communication Gaps with Physicians
Presentation by Inspire CEO Brian Loew to the Pharmacovigilance 2014 conference
September 10, 2014

Brian Loew: Connecting Patients, Savings Lives
PharmaVOICE magazine
August 1, 2014

Beyond Privacy: Social Media’s Ethical Responsibility to the Clinical Trial Patient
Presentation by Inspire CEO Brian Loew to the Society of Clinical Research Associates (SoCRA) conference
July 9, 2014

Scleroderma Foundation/Inspire Support Community at a Glance
Infographic
June 30, 2014

Exploring Your Treatment Options for PNET
Webinar
June 18, 2014

Strategies and Tactics to Leverage Social and Digital Media in Clinical Research
Presentation by Inspire CEO Brian Loew at Drug Information Association's 49th Annual Meeting
June 17, 2014

Inspire Community to Surpass Milestone of 500,000 Members
News release
June 16, 2014

The Inspire Community: Together we're better
A mother of a boy with the rare disease describes the Inspire/Tuberous Sclerosis Alliance Support Community as her virtual family.
June 2014

How patients with an inconclusive diagnosis should proceed
Los Angeles Times
May 18, 2014

Advancing Quality of Care for Tuberous Sclerosis Complex Patients: A Case Study of Successful Partnership
Presentation at iPharma conference, featuring Inspire CEO Brian Loew, Kari Luther Rosbeck, President and CEO, Tuberous Sclerosis Alliance, and Roland Kreissig, MD, Director, Rare Diseases Marketing, Novartis.
May 8, 2014

Midnight Friends: How Wired Patients Are Transforming Chronic Illness
WBUR
May 2, 2014

May is National Osteoporosis Month
News release
April 30, 2014

The Benefits of Online Health Communities
American Medical Association Journal of Ethics
April 2014

Advanced Breast Cancer: Your Support Options
Healthline
March 28, 2014

An interview with Brian Loew
Powerful Patient
March 20, 2014

Experts by experience 2014: A compilation of patients’ stories
A special report by Inspire, developed in cooperation with the Stanford University School of Medicine
March 19, 2014

The Inspire Q&A: Inspire talks with Don Dizon, MD
March 14, 2014

Here Are My Favorite Psoriasis Websites. What Are Yours?
Everyday Health
March 7, 2014

A Connected Market
PharmaVOICE
March 2014

The Legacy of the Tarceva Diva
The Health Care Blog
February 27, 2014

Brian Loew on Online Cancer Patient Communities
OncNurse TV
Feb. 21, 2014

Lives Turned Upside Down: The Impact of Sarcoidosis
Infographic created by Inspire and its partner, the Foundation for Sarcoidosis Research
February 20, 2014

How e-Patients are Learning and Sharing Information about Pre-Approval Therapies
Presentation by Inspire CEO Brian Loew to the Patient-Centered Technologies for Post-Marketing and Real World Data conference
February 6, 2014

Rare disease patients are talking – are you listening?
pharmaphorum
February 4, 2014

In Praise of Lisa Bonchek Adams, Breast Cancer Expert
The Health Care Blog
January 16, 2014

Mission Pharmacal Conducts Online Survey of Osteoporosis Patients
News release
January 15, 2014

Inspire Rare Disease Health Communities at a Glance
Infographic
January 8, 2014

Tapping the Resources of Online Patient Communities
Oncology Nursing News
January 6, 2014

Elizabeth Edwards' daughter weighs in on metastatic breast cancer
CURE Magazine
December 12, 2013

Public Health Departments Use Social Media for Education and Monitoring
iHealthBeat
December 9, 2013

The Inspire Q&A: Inspire talks with Kathy Nieder, MD
December 6, 2013

The Power of Social Media is Shaping the Future of Health Care
Mayo Clinic's Future of Health Care blog
December 3, 2013

The Pulmonary Fibrosis Foundation / Inspire Support Communities
Infographic
November 2013

Trialing successful social media strategies in clinical research & development
Presentation by Inspire CEO Brian Loew to the Global Innovation in Clinical Research & Operations Summit
October 23, 2013

Finding Support in Online Communities
A video by NPS Pharmaceuticals, featuring Inspire partners Short Bowel Syndrome Foundation and the Oley Foundation.
October 2013

Inspire Patient Engagement Community Reaches 400,000-Member Milestone
News release
October 3, 2013

Inspire Launches Online Support for PNET Patients
PM360
September 2013

Closing perception gaps between patients and their caregivers
Presentation led by Inspire CEO Brian Loew, at Stanford University School of Medicine's "Medicine X" conference
September 29, 2013

The meaning of personalised healthcare to patients: How good communication underpins positive patient outcomes in oncology and beyond
A special report by Inspire and pharmaphorum media
September 25, 2013

Neurofibromatosis Social Media Trends
Presentation by Inspire CEO Brian Loew to the Medicine 2.0 conference
September 23, 2013

New Report Offers Patient Perspectives on Ovarian Cancer Treatment, Diagnosis
A special report by Inspire partner the Ovarian Cancer National Alliance
September 11, 2013

The Inspire Q&A: Inspire talks with Tammy Andries
September 3, 2013

Inspire Cancer Support Communities -- by the numbers
Infographic
August 23, 2013

Beyond Privacy: Social Media’s Ethical Responsibility to the Clinical Trial Patient
Presentation by Inspire CEO Brian Loew to Society of Clinical Research Associates (SoCRA), Harnessing Social Media to Advance Clinical Research conference
August 2, 2013

Online community for PNET patients now available from Inspire
PharmaLive
July 12, 2013

Novartis sponsors rare disease patient community
PMLive
July 11, 2013

Inspire partners with Novartis and six patient advocacy groups to help connect patients affected by pancreatic neuroendocrine tumors (PNET)
News release
July 9, 2013

Reaching a Rare Disease Community Eager for Treatment Options
Presentation by Inspire CEO Brian Loew at Drug Information Association's 49th Annual Meeting
June 25, 2013

Patient-initiated research proves social Web's power and promise
Presentation by Inspire's CEO Brian Loew and patient advocate Katherine Leon at the #140You conference, New York, NY
June 18, 2013

Check Please: Choosing the Best Hospital for Your Cancer Surgery
CURE Magazine
June 2013

Online Won't Ever Replace Face-to-Face. Or Will It?
The Health Care Blog
June 17, 2013

Learning a Lesson From Patient Advocates
PM360
May 25, 2013

5 lessons Inspire learned from its 5 million posts written by patients and caregivers
Ragan's Health Care Communication News
May 20, 2013

Linnea Duff: Living With Late-Stage Lung Cancer
Everyday Health
May 14, 2013

Patient Blogging Could Offer Host of Benefits
iHealthBeat
May 13, 2013

Mom's virtual cancer family helps daughter cope with loss
NBC.com
May 12, 2013

Empowered Patients
PharmaVOICE magazine
April 2013

The Inspire Q&A: Inspire talks with Deanna Attai, MD
April 1, 2013

Support Goes Social: Social media and the Web connect those coping with psoriatic diseases
Psoriasis Advance magazine
Winter 2013

The Preemie Parent Perspective: RSV Season
Neonatal Intensive Care Magazine
March/April 2013

Experts by Experience -- A compilation of patients' stories
Inspire releases a 38-page special report in partnership with Stanford University School of Medicine
March 13, 2013

Families dealing with tragedy find unlimited support through Facebook, other social media
USA Today
March 11, 2013

Psoriasis Patients Flock to Social Media for Practical Info
BIOtechNOW
March 8, 2013

What's Hot in Social Media
PM360
March 1, 2013

Neurofibromatosis Social Media Trends
Journal of Participatory Medicine
February 28, 2013

Genetic Alliance and Inspire Partner on Rare and Genetic Disease Support Community
Media release
February 28, 2013

Neurofibromatosis Social Media Trends -- An Infographic
A report from Inspire and Manhattan Research, in alliance with Neurofibromatosis Network
February 26, 2013

Psoriasis patients use social networks. Here's why you should care.
pharmaphorum
February 11, 2013

The Inspire Q&A: Inspire talks with Lindsey Miller
January 29, 2013

Social Media Trends in Psoriasis
Everyday Health
January 22, 2013

Psoriasis Social Media Trends (a report and infographic)
A report from Inspire and Manhattan Research, in alliance with National Psoriasis Foundation
December 2012

Using Digital Media Wisely
PharmaVOICE magazine
November/December 2012

Deliver early or risk a stillbirth
Slate
November 5, 2012

Ad-ventures in marketing VI
Med Ad News
November 2012

The Financial Toll of Childhood Cancer
WebMD
October 25, 2012
Click here to see infographic created by Inspire and the American Childhood Cancer Organization

Pinktober' ignores breast cancer patients who can't be cured, some say
NBC News, Health on TODAY
October 11, 2012

How online patient forums can help doctors
Ragan's Health Care Communication News
October 5, 2012

New Online Resource Gives Voice to the Advanced Breast Cancer Community
Media release
October 1, 2012

Patients' Use of Social Media Spurs More Clinical Research
iHealthBeat
September 17, 2012

Couple Share Deadly Lung Cancer and Undying Love
ABCNews.com
September 14, 2012

The Inspire Q&A: Inspire talks with "Arthritis Ashley"
September 13, 2012

Health Web Sites: The Best-Kept Secret to Getting Better Care
Bottom Line Publications
September 2012

Patient E-ngagement: A Marriage Made in Cyber Space
PharmaVOICE magazine
September 2012

Pharma Patient Survey Analysis Report 2012
eyeforpharma
July 2012

The untapped potential of patient-initiated research in studying rare diseases
KevinMD
July 2, 2012

Perceptions of stage IV NSCLC patients and caregivers regarding severity of symptoms and willingness to participate in supportive care trials
Presentation at Multinational Association of Supportive Care in Cancer (MASCC) 2012 International Symposium
June 28, 2012

Patients band together via Web, persuading doctors to study their rare condition
Philadelphia Inquirer
June 25, 2012

Patients Find Each Other Online To Jump-Start Medical Research
National Public Radio
May 28, 2012

New Digital Frontiers for Pharma: Brian Loew, CEO, Inspire
Doctors 2.0 & You conference
May 24, 2012

Three Best Health Care Tips – mHealth to Social Media Networking
Health in 30
May 16, 2012

Naperville women persuade Mayo Clinic doctor to take their case
Chicago Sun-Times
May 16, 2012

Health care journalists have tendencies similar to those of doctors
KevinMD
May 13, 2012

Get the Right Diagnosis. . . Every Time
Health magazine
May 2012

The Inspire Q&A: Inspire talks with Howard Luks, MD
Inspire interviews physician and social media advocate Howard Luks as part of the ongoing Inspire Q&A series.
April 9, 2012

Patient Communities: Getting to Know You
PharmaVOICE magazine
April 2012

5 reasons to meet your patients in online support communities
Ragan's Health Care Communication News
March 29, 2012

Her crisis may help unlock mystery
San Antonio Express-News
March 8, 2012

Social Media Offers New Recruitment Strategy for Clinical Trials
iHealthBeat
March 1, 2012

Encephalitis Survivors: Lonely Battles to Reclaim Lives
ABCNews.com
February 29, 2012

A Rare Disease Known As 'E', And The Invisible Injuries It Leaves Behind
CommonHealth, WBUR
February 29, 2012

I'm Not the Me I Remember: Fighting Encephalitis (pdf download)
Inspire, in partnership with patient advocacy organization Encephalitis Global, releases a 32-page special report, based on findings from an online survey conducted on Inspire's Encephalitis Global Support Community.
February 27, 2012

Rare Disease Online Support Community Reaches Milestone
Media release (Click here to download a pdf of the release)
February 15, 2012

Helen Palmquist: Supporting my cyber-sisters with words of hope
Guest column on e-Patients.net by member of the Ovarian Cancer National Alliance Support Community on Inspire.
February 8, 2012

Just Click Here
Med Ad News
February 2012

Close to Home: Is Good Health Communicable?
Pharmaceutical Executive Magazine
January 18, 2012

The Inspire Q&A with Michele Baldwin
Inspire interviews cervical cancer awareness activist Michele Baldwin as part of the ongoing Inspire Q&A series.
January 3, 2012

Overcoming tragedy requires a team
KevinMD
January 1, 2012

The rise of citizen scientists and patient initiated research
KevinMD
December 10, 2011

Inspire Passes 50,000 Mark For Members Affected By Cancer
Media release (Click here to download a pdf of the release)
December 20, 2011

A Different Normal: The Feet Only a Mother Could Love
The TalkPsoriasis Community on Inspire is featured in a column on WebMD.
December 14, 2011

Advanced Breast Cancer Support Community on Inspire Sees Continued Growth
Media release
December 2, 2011

An interview with Danielle Leach
I AM Modern Magazine
November 26, 2011

Social Media: The Time Has Come to Run the Hurdles
PharmaVOICE magazine
November/December 2011

Narratives from the NICU: Neonatal Intensive Care Units Through the Eyes of Parents
Inspire releases a 32-page special compilation based on first-person stories from members of the Inspire Preemie Support Community.
November 1, 2011

Obama Issues Executive Order To Ease Drug Shortages
ABCNews.com
October 31, 2011

The SCAD Ladies: Where Patient Empowerment Meets Rare Diseases
About.com examines patient-initiated research conducted on the WomenHeart Support Community on Inspire. (For 35-page special report by Inspire, click here.)
October 17, 2011

Improving Advocacy by Leaps and Bounds
Pharmaceutical Executive magazine (p. 84)
October 2011

Inspire Report Details "SCAD Ladies" Patient Empowerment Story
Media release
October 13, 2011

The 'SCAD Ladies' Story, And Its Lessons For The Life Sciences Industry
Life Science Leader's Clinical Leader
October 13, 2011

Health 411: Questions on the road to breast cancer treatment
Los Angeles Times
October 3, 2011

Patients use social media to inspire Mayo Clinic heart research
Ragan's Health Care Communication News
September 27, 2011

A Skydiver Jumps, and an Online Community Exults
Journal of Participatory Medicine
September 19, 2011

Overcoming "battle fatigue" in an online support community
Guest column on e-Patients.net by member of Inspire's Lung Cancer Survivors Support Community.
September 17, 2011

Inspire Patient Support Communities Pass 200,000 Mark
Media release
September 12, 2011

How and Why You May Benefit by Participating in Patient Communities
From About.com's Patient Empowerment Blog.
September 6, 2011

When Patients Band Together
The Wall Street Journal cites Inspire's WomenHeart Support Community in article describing how women with a rare heart defect leveraged social media to spur the Mayo Clinic to launch new clinical research.
August 30, 2011

e-Patient Networks on the Rise
Altarum Institute's Health Policy Forum
August 15, 2011

Pharmalot Podcast: Patients are thought leaders too
Pharmalot, a division of PharmaLive, interviews Inspire CEO Brian Loew.
August 3, 2011

Doctor-Patient Conversation Not Just For The Office
InformationWeek Healthcare
July 25, 2011

A community lifts up a priest in need
In guest column on ePatients.net, Wendy Station, co-founder of Inspire partner Encephalitis Global, discusses the power of her online community.
July 20, 2011

The Inspire Q&A with "Mithra"
Inspire interviews Behnam Mojtahedi, one of Inspire's more active mebmers, as part of the ongoing Inspire Q&A series.
July 19, 2011

Social Networking on the Front Line of New Modern Medicine
Huffington Post
June 28, 2011

Health Technology Leader Rick Toren Joins Inspire's Board to Help Fuel Growth
Media release
June 27, 2011

10 Things Not To Say To Parents Of Preemies
CommonHealth, WBUR
June 17, 2011

Insensitive Comments Common for Parents of Premature Infants
ABCNews.com
June 15, 2011

Insensitive Comments and Their Impact on Preemie Mothers
Inspire releases a 21-page special report, Insensitive Comments and Their Impact on Preemie Mothers, based on findings from an online survey conducted on the Inspire Preemie Support Community.
June 14, 2011

Inspire Grows Partnerships with Patient Groups by 35%
Media release
June 9, 2011

Collaborations Through Social Media
Media release: Inspire and the Biotechnology Industry Organization (BIO) will hold a half-day seminar, "Collaborations through Social Media," on June 8, 2011, at BIO's headquarters in Washington, DC.

Medical Media: Patients turning to social networks for advice, support
Inspire featured in article about online support communities.
May 16, 2011

The ability to bring loss into the conversation
Blogger Ted Eytan, MD, interviews Danielle Leach, Inspire's Director of Partnerships, about her advocacy for childhood cancer awareness.
May 13, 2011

The Inspire Q&A with Kevin Pho, MD
Inspire interviews physician blogger Kevin "KevinMD" Pho as part of the ongoing Inspire Q&A series.
May 11, 2011

Social Networking Health Sites: What You Should Check
Inspire CEO Brian Loew interviewed by WebMD.
May 10, 2011

The Inspire Q&A with Bonnie Diraimondo
Inspire interviews patient advocate Bonnie Diraimondo as part of the ongoing Inspire Q&A series.
May 5, 2011

Preemie mom, preemie baby: Does it run in families?
Inspire featured in profile by TODAY.com of member of Preemie Support Community.
May 4, 2011

Tapping Into the Power by Getting Personal
PharmaVOICE magazine interviews Inspire CEO Brian Loew.
May 2011

Stories of Loss
iVillage features Danielle Leach, Inspire's Director of Partnerships.
April 18, 2011

Patient with Chronic Lung Cancer Becomes Hospice Caregiver
ABCNews.com interviews Inspire community member about end-of-life issues.
March 28, 2011

Three Ways to Get More From the Internet and Social Media
Inspire CEO Brian Loew's guest article for the newsletter of RESOLVE, the National Infertility Association.
Spring 2011

The Inspire Q&A with e-Patient Dave deBronkart
Inspire interviews patient advocate and author Dave deBronkart as part of the ongoing Inspire Q&A series.
March 14, 2011

Social Media: Medical Social Networking, Part 2
Health in 30 discusses Inspire as part of look at online resources for patients and medical professionals.
March 7, 2011

Patients can inspire the industry to innovate
pharmaphorum interviews Inspire CEO Brian Loew.
March 4, 2011

Medical Social Networking
Inspire featured in FOX News Live segment with patient advocate Barbara Ficarra.
March 3, 2011

Social media boosting patient recruitment
Outsourcing-Pharma.com interviews Inspire CEO Brian Loew.
March 2011

Rare Diseases Day 2011 - And You
From the Patient Empowerment Blog on About.com, Inspire's Rare Disease Day report featured.
February 28, 2011

Inspiring mother...Danielle Leach
Inspire's Director of Partnerships, Danielle Leach, was featured on The Cancer Warrior radio show.
February 25, 2011

Patients with rare diseases share their extraordinary stories
SCOPE, the Stanford University School of Medicine blog, reviews the Inspire Rare Disease Day report.
February 22, 2011

The Road to Diagnosis
In recognition of International Rare Disease Day 2011, Inspire has compiled first-person narratives in a new report, The Road to Diagnosis: Stories from Patients with Rare Diseases. The compilation is drawn from a selection of the 170,000 members of Inspire's online support communities.
February 17, 2011

Socialution: The Evolution of Social Media
Medical Marketing & Media discusses Inspire as part of its look at patient support communities.
February 15, 2011

Taking Action When Someone you Love May Need it the Most
Health in 30
February 11, 2011

Ladies, Love Your Body, Protect Your Heart
The Huffington Post
February 10, 2011

A lesson about true friends for those facing serious illnesses
KevinMD.com
January 27, 2011

Inspire youself - get support on the internet
Powerful Patient
January 26, 2011

The Inspire Q&A with "RA Warrior" Kelly Young
Inspire interviews patient advocate Kelly Young as part of the ongoing Inspire Q&A series.
January 21, 2011

National Psoriasis Foundation Partners with Inspire.com to Improve Online Message Board
National Psoriasis Foundation
January 20, 2011

Residents look for ways to fill holes in support group network
Times of Northwest Indiana
January 16, 2011

Inspire CEO Brian Loew speaks about online patient communities Audio | Interview transcript
Health Business Blog
January 5, 2011

ThyCa: Thyroid Cancer Survivors' Association Launches Online Support Community
Media release
December 27, 2010

The Inspire Q&A with Trisha Torrey
Inspire kicks off its Q&A series by interviewing patient advocate Trisha Torrey.
December 3, 2010

Social Networks for Life Sciences
Deloitte
December 2010

Travelers with medical conditions fear increased TSA security procedures
KevinMD
November 30, 2010

Inspire CEO to Address Healthcare Digital Marketing Conferences
Media release
October 29, 2010

Social Networks Make Rare Diseases Not so Hard to Find
ABC News
October 15, 2010

Community Relations 2.0
Harvard Business Review, November, 2009

Between the Lines and A Sense of Community
Proto
Fall, 2009

Web health sites harness power of social networks
The Washington Post
October 19, 2009

Social Networking Sites Embrace Clinical Trials
Bio-IT World
May 19, 2009

See Inspire at the Health 2.0 Meets Ix conference in Boston
April 22-23, 2009

Pharma's Facebook -- Research 2.0: How drug companies are using social networks to recruit patients for clinical research.
Newsweek
March 10, 2009

Social Networking Sites Have Myriad Trial-Related Uses
eCliniqua
March 2, 2009

Online Communities Meet Clinical Trials: Inspire's Co-Founder on Social Networking, "Health 2.0," and Trust
Xconomy
December 11, 2008

Health 2.0: Patients on Social Networks
Business Week
December 4, 2008

Social Networking for Patients
Bits Blog - New York Times
October 24, 2008

See Inspire at the 5th Annual Connected Health Symposium in October
Media release
October, 2008

Web 2.0 Can Give Consumers More Control over Health Care
eWEEK
April 25, 2008

Inspire Will Introduce Trials to Online Community Members
Bio-IT World
April 7, 2008

Interview with Inspire
MarketIntellNow
February 28, 2008

Web sites allow patients to keep family and friends updated and connect with others
The Ocala Star-Banner
February 26, 2008

Inspire Announces Five New Nonprofit Partnerships
Media release
March 4, 2008

Inspire Launches National Online Health-and-Fitness Community
Media release
March 4, 2008

Inspire to Build its 30th Online Community, with Health Nonprofit
Media release
March 3, 2008

Log On For Support
The Washington Post
February 5, 2008

Builder of Online Health Communities Changes Name to Inspire
Media release
February 4, 2008

New Online Support Network Tool to Unite Sudden Cardiac Arrest Survivors and Those at Risk
Media release
January 18, 2007

ClinicaHealth Powers ALS Association's Online Advocacy Community
Media release
August 7, 2006

ClinicaHealth's Online Health Community Platform Implemented for WomenHeart
Media release
July 26, 2006

ClinicaHealth Online Health Community Platform Implemented at The Children's Inn (TCI) at the National Institutes of Health (NIH)
Media release
July 26, 2006