Patient Journey

Patient Journey 2017-02-24T11:41:53+00:00

Clients who work with Inspire can benefit from these four patient-centric values.

Access

Patient-centricity has become the bedrock of  the healthcare industry.  To that end, the patient and caregiver become the audience.  Inspire’s engaged patients and caregivers are accessible, flexible and willingly collaborate.  Through collaboration with Inspire, our clients get an intimate understanding of the day-to-day reality of the patient journey.

  • Community Members
  • Surveys and Research
  • Private Research Communities

With Inspire, clients have easy access to large numbers of patients.

Osteoporosis = 23,000+

Ovarian Cancer = 22,000+

COPD = 13,000+

Skin Cancer = 12,000+

Head/Neck Cancer = 2,800+

Psoriasis = 54,000+

Lung Cancer = 39,000+

T2 Diabetes = 30,000+

Heart Disease = 30,000+

Infertility = 25,000+

Clients who work with Inspire can easily find people dealing with rare diseases.

Ehlers Danlos Syndrome=31,000+

Scleroderma=24,000+

Explore these communities.

Inspire’s engaged patients are willing to participate in surveys and research.

13,633 survey respondents obtained in 1 month time period complete Inspire’s Annual Survey

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Inspire provides quick turn-around times on research.

172 responses in 24 hours to a 30-minute survey with 86 possible questions

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Inspire can survey based on client’s specific inclusion/exclusion criteria.

150 responses to the 15-minute survey within 10 hours of deployment

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Engaged patients in Inspire communities are willing to be involved in private research communities.

Meeting stringent screen-in criteria, Inspire built and hosted a private research community to allow for long-term client interactions with patients.

It is easy to engage patients over time because patients embrace the platform and make it part of their lives.

Over an 11-month period, 150 sleep disorder patients provided insights.

Perceptions

Through social listening, survey and private research communities, clients deepen their understanding of patient and caregiver mindset, uncover unmet needs and infuse the authentic voice of the patient and caregiver for strategic solutions.

  • Collaboration
  • Lived Experience
  • Emotions Impact

Collaborating with patients and caregivers to intimately understand their day-to-day realities helps clients build meaningful solutions.

Slightly more than half of all patients have gone without a prescribed medication for one reason or another.

29% Cost

27% Side effects

21% Insurance issues

16% Lack of effectiveness

3% Dosing issues

Patients “lived experience” with conditions provides real world needs assessment.

50%

Inspire members

Almost 50% of surveyed Inspire members indicated that the benefit of being a member of Inspire was learning about clinical trials and treatment options.

Feelings and emotions impact patients/caregivers throughout the patient journey.

67%

Chronic Pain

67% of almost 2000 patients experiencing chronic pain often or sometimes feel that doctors, nurses, pharmacists or other healthcare professionals are skeptical of their need for opioids to treat pain.

Relevance

In a 24/7 media world, getting people’s attention, keeping it and being remembered can seem like unattainable goals.  This is why relevance is critical.  With detailed tailored and targeted communication, your messages rise above the rest.   Inspire’s engaged patient and caregiver communities provide the details clients need to be truly relevant to their customers.

  • Patient Life Experience
  • Testimonial A
  • Testimonial B

Leveraging “at-the-ready” relationships provides specifics that resonate, intimately clarifying understanding of the patient/caregiver lived experience.

What thoughts wake up an oncology patient at 3 am Saturday morning?

How is a mother of three children with type 1 diabetes dealing with overnight glucose lows at this moment?

Focus on what’s important to the individual.

“Although I use prescription Percocet rarely and always request refills long after the the expected refill date, I still feel like the minute someone in the medical profession takes my request for a refill, I am treated as if I am a drug addict.  You would think I asked for the AIDS virus by the way they react and this is for a prescription medication THEY prescribed to ME that I have never misused or asked for in any kind of shady manner.  I find it offensive to be treated like an addict and am highly upset that I am subjected to a ‘random’ drug test.”

Obtain the fine points of the user experience.

“Being on a regimen of methadone and percocet has given my life back, as I can get out of bed and function. I can’t tell anyone as I face judgment, lectures or fear of being targeted for my medications.  When I first got my methadone prescription, I took it to where I always filled my medicines.  There was a long line of people around and they looked at it and threw the script back at me saying “We DON’T deal with people like you.  We don’t fill THOSE TYPES of medicine!” I was mortified and caught off guard.  I remember that feeling of shame and embarrassment and unfortunately it wasn’t the last time.  You never forget that feeling of having to prove your pain is real and you are worthy.  Cancer patients are treated this way.”

Health Literacy

How do healthcare businesses and professionals bridge the gap between what they intend to convey to patients and caregivers and what is actually understood by patients and caregivers?  First, healthcare businesses and professionals need to assess the basic knowledge of the patient and caregiver.  Second, they need to identify what may interfere with understanding, e.g., feelings, emotions, the capacity to process health information.  Third, they need access to the “language” of the patient and caregiver and they need to be able to speak that language.  Inspire’s communities are the gateway to these three steps.

  • Information Gathering
  • Health Knowledge

Feelings and emotions impact patients/caregivers throughout the patient journey, interfering with information gathering and understanding.  Membership in Inspire builds emotional support and bridges to learning.

Benefits of belonging to Inspire’s Ovarian Cancer Support Community

Embarrassment about lack of health knowledge or understanding of health is overcome through supportive relationship.

About 40% of respondents belonging to one of our cancer communities reported asking for or receiving healthcare-related advice on social media.

An online support communities allows people to connect when they are physically and emotionally able to attend to the information

40% of respondents who belong to a cancer community confirmed that they offer health-related advice on social media.