As it was developing the osteoporosis treatment Denosumab, Amgen's Government Affairs department wanted to understand patient sentiment about access to Medicare early bone density screening (DXA) services. Amgen wanted to help mobilize patients to lobby federal lawmakers to ensure Medicare coverage of DXA.
Amgen partnered with Inspire, which already managed the National Osteoporosis Foundation (NOF) online support community, to create and deliver a survey to 2,000 members of the community.
300 patients and caregivers delivered completed responses, a 28% response rate. Importantly, 60% of those respondents said they would be willing to lobby their representatives regarding the importance of DXA access and reimbursement.
For Amgen, the project demonstrated the capability to rapidly leverage an engaged online community to glean time-sensitive patient insights in a cost-efficient manner and mobilize concerned patients around a single issue.
Deloitte cited the Amgen/NOF/Inspire project in a report on social networks in the life sciences industry, noting in its report, "Social networks can help companies mobilize patients by collaborating with medical foundations."
Brian Loew, CEO of Inspire, noted the project gave Amgen another added benefit: letting patient thought-leaders know that Amgen supports an issue important to those patients.
Inspire (www.inspire.com) creates and manages patient communities that are platforms for access to highly engaged, authentic patient populations. They are built in partnership with leading patient advocacy organizations. Inspire is composed of more than 80 communities, organized by therapeutic area, created in exclusive partnership with national patient advocacy organizations, and over 300,000 patients and caregivers.
Industry can access these engaged patient populations in a variety of ways, including market research, clinical trial recruitment, issues analysis, opinion surveys and promotion of brand awareness.
For more information, contact Amir Lewkowicz, VP of Partnerships, at email@example.com, or at 617-372-2636.